[Music]
this is our story the story
of our friendship and our
disease
it all started two years ago when
friend in common put us in
contact
roberta sick sla for seven years and
claudio sick sla 5 perhaps many
you do not know that ALS is an acronym
of amyotrophic lateral sclerosis a
insidious disease today without care
immobilizes your muscles slowly
while leaving intact the mind
are about 6000 cases a year
Italy with an expected average life
three years thanks to this friend
we begin to write the first timid and
email to tell our young
everyday problems
our small joys of our large
emotions and immediately
we discovered one thing that unites us
great will to live
despite the disease that hit us
no one discovers new lands if it is not
willing to leave the mainland and we
we did it
in a few weeks we will celebrate a
Another birthday with sla yes you
understood we said party
although always a contradiction
It is our way to exorcise
to defeat the disease for at least a
little about the central theme of
this afternoon
we want to read a given thought
a pier Paolo Pasolini
I think it is necessary to educate
the value of new generations
defeat its management humanity
that springs to build a
Identity able to experience a
common destiny where you can
fail and start over without the
value and dignity nor is it known
packaged through pasolini
we understand an important concept
fail and start again two simple
words that contain a world
a philosophy of life when you are in
hand a diagnosis that has the flavor of
a death sentence
useless to ask him why because it is
to me what I did wrong
science is not able to answer
is only a deep faith can give a
meaning to what we do not understand in our
opinion there are only two attitudes
facing such a devastating disease
or you let go you do not react
waiting for death and dying a little
every day or choose to not react
give in the sla and decide to live
roberti god
we choose to live our
second life different from the first
but that it is still worthwhile to be
lived
certainly we not now have major limitations
We can no longer move independently
We communicate only through technology
we are attached to a machine
breathe 24 hours a day
all these difficulties do not have
however, prevented from visiting the expo
milan roma means imprisonment by the saint
father
or even attend concerts and
attend the Christmas Mass
inflicted on prisoners of Reggio Emilia
in short, to live a life almost
normal
There are people who have changed
history that have affected millions of
people
we think of martin luther king in america
nelson mandela in south africa to mother
teresa of calcutta in india and many
others
all simple people but with a
great willpower
We all need heroes
for an example to inspire for
draw strength and hope to make a
latest example and closer
roberts and I
we draw inspiration from dad Francis
he is our hero is he who
we draw the strength to go days ahead
after day
the other pillar on which we rely
constantly and the family and friends
we would not have been able to do this
we have done and many projects
we have in mind for the future without
the support of our family the sla
not conquer not only affects the
patient but also deeply affects
in the family around him
modifying and changing the relationships
interpersonal and vision of the future
the family affection and human warmth
support for the patient who has a
desperate need with friends
the disease act like a sieve
he drops the occasional friendships and
interested devoid of values and you do not
damage anything but retains friendships
deep and true unselfish for
friends and family
the real message to the patient is the
same with a smile I will tell you
I’m
It’s not just counting on me
seemingly fragile we are a burden
to society because we are a cost
in medicine aids in terms of
specialist visits and assistance
home
useless to deny it, but we believe that we
the other is on closer believe
that there is in all of us
an enormous wealth of experience
suffering of positive potential that
They must not go wasted but rather must
be transmitted shared in the chemical
catalysts are the agents that
promote the reaction and prepare the
field because the end result
happening here is we like to think that we
fragile
we are the catalysts that we can
lead by our example message
positive to the new generations years ago
the sick were isolated as hidden
the shame from their families
now no longer the sick like us
they come out they want to live a
life as normal as possible want
play an active role in society
we want to feel useful again
we still have many things to do many
things to say and much more to give
we came to the end of this short
some have known the meeting
our disease
we understand that you may fall,
start with dignity
We have known heroes
found a way to react with the sla
the help of the faith of our family
and friends
a few weeks ago the Holy Father is
came to visit us and during carpi
the homily reminded us of the words
lord
Lazarus raised Lazarus is all of us
we like to think that today’s meeting
not remain an isolated incident but
is a starting point
us on facebook and available to
continue the dialogue with you to
Finally we have a required
Next time you come across a sick
wheelchair not avoid it do not turn
the face from another part but
Give them a smile thanks
[Applause]
this is our story the story
of our friendship and our
disease
it all started two years ago when
friend in common put us in
contact
roberta sick sla for seven years and
claudio sick sla 5 perhaps many
you do not know that ALS is an acronym
of amyotrophic lateral sclerosis a
insidious disease today without care
immobilizes your muscles slowly
while leaving intact the mind
are about 6000 cases a year
Italy with an expected average life
three years thanks to this friend
we begin to write the first timid and
email to tell our young
everyday problems
our small joys of our large
emotions and immediately
we discovered one thing that unites us
great will to live
despite the disease that hit us
no one discovers new lands if it is not
willing to leave the mainland and we
we did it
in a few weeks we will celebrate a
Another birthday with sla yes you
understood we said party
although always a contradiction
It is our way to exorcise
to defeat the disease for at least a
little about the central theme of
this afternoon
we want to read a given thought
a pier Paolo Pasolini
I think it is necessary to educate
the value of new generations
defeat its management humanity
that springs to build a
Identity able to experience a
common destiny where you can
fail and start over without the
value and dignity nor is it known
packaged through pasolini
we understand an important concept
fail and start again two simple
words that contain a world
a philosophy of life when you are in
hand a diagnosis that has the flavor of
a death sentence
useless to ask him why because it is
to me what I did wrong
science is not able to answer
is only a deep faith can give a
meaning to what we do not understand in our
opinion there are only two attitudes
facing such a devastating disease
or you let go you do not react
waiting for death and dying a little
every day or choose to not react
give in the sla and decide to live
roberti god
we choose to live our
second life different from the first
but that it is still worthwhile to be
lived
certainly we not now have major limitations
We can no longer move independently
We communicate only through technology
we are attached to a machine
breathe 24 hours a day
all these difficulties do not have
however, prevented from visiting the expo
milan roma means imprisonment by the saint
father
or even attend concerts and
attend the Christmas Mass
inflicted on prisoners of Reggio Emilia
in short, to live a life almost
normal
There are people who have changed
history that have affected millions of
people
we think of martin luther king in america
nelson mandela in south africa to mother
teresa of calcutta in india and many
others
all simple people but with a
great willpower
We all need heroes
for an example to inspire for
draw strength and hope to make a
latest example and closer
roberts and I
we draw inspiration from dad Francis
he is our hero is he who
we draw the strength to go days ahead
after day
the other pillar on which we rely
constantly and the family and friends
we would not have been able to do this
we have done and many projects
we have in mind for the future without
the support of our family the sla
not conquer not only affects the
patient but also deeply affects
in the family around him
modifying and changing the relationships
interpersonal and vision of the future
the family affection and human warmth
support for the patient who has a
desperate need with friends
the disease act like a sieve
he drops the occasional friendships and
interested devoid of values and you do not
damage anything but retains friendships
deep and true unselfish for
friends and family
the real message to the patient is the
same with a smile I will tell you
I’m
It’s not just counting on me
seemingly fragile we are a burden
to society because we are a cost
in medicine aids in terms of
specialist visits and assistance
home
useless to deny it, but we believe that we
the other is on closer believe
that there is in all of us
an enormous wealth of experience
suffering of positive potential that
They must not go wasted but rather must
be transmitted shared in the chemical
catalysts are the agents that
promote the reaction and prepare the
field because the end result
happening here is we like to think that we
fragile
we are the catalysts that we can
lead by our example message
positive to the new generations years ago
the sick were isolated as hidden
the shame from their families
now no longer the sick like us
they come out they want to live a
life as normal as possible want
play an active role in society
we want to feel useful again
we still have many things to do many
things to say and much more to give
we came to the end of this short
some have known the meeting
our disease
we understand that you may fall,
start with dignity
We have known heroes
found a way to react with the sla
the help of the faith of our family
and friends
a few weeks ago the Holy Father is
came to visit us and during carpi
the homily reminded us of the words
lord
Lazarus raised Lazarus is all of us
we like to think that today’s meeting
not remain an isolated incident but
is a starting point
us on facebook and available to
continue the dialogue with you to
Finally we have a required
Next time you come across a sick
wheelchair not avoid it do not turn
the face from another part but
Give them a smile thanks
[Applause]
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