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What If We Give Mental Illness a Microphone? | Kaitlinn Estevez | TEDxAdelphiUniversity


I am split in two and I wonder which

side of myself

am I an imposter – which lesser part of

me betrays the truer self or is there a

distantly operating separate projections

please pay no mind to the woman behind

the curtain I wonder how many body

shells of mine must walk around

unoccupied for the amount of times that

I have shed my skin how many of those

ghosts have approached a friend in a

haunting making them believe I’m who I

used to be when I stretch my neck

towards the heavens at night

I am marveled at stars seeming to touch

or connect to form Ellis trations of

deities only we are told each one of

these stars are millions of miles torn

from one another

unaware of aliens on earth creating

pictures with them how is it I feel

myself contained in one skeleton yet a

division leaves me at stars lengths away

what a display that must show for

everyone else just as long as you’re far

back enough to see and you’ll be sure

I’ll place you on earth and present

myself up in the stars but behind me is

still a black hole waiting to rip me

apart I have a capacity to conjure up

Canterbury Tales so aware of my

receiving end so I structure my jesters

never to be ridiculed because I

carefully color in while a hunger

Fester’s in my stomach climbs up to my

throat to skew and twist all words that

leave my mouth to sound appealing to

your ear leaving authenticity arbitrary

only artificial apparitions to please an

audience I wonder if you were to beat me

today and then meet me tomorrow would

your mind separate these events in its

memory leaving as much space in between

as stars that burn out and wear out and

die long before anyone on earth sees

because we still witness their glimmer

what if I told you that the woman behind

this

mask is already a corpse as I search for

heartbeats and future plans try to find

a pulse you know could be forgetting

here neglecting where I stand

has there been enough time between the

beginning of this poem and now to

reintroduce myself would you still think

that it’s me thank you

I was first admitted into the psych ward

when I was 16 years old for my

depression and during that visit I met

three different kinds of patients one

with those like myself they found

themselves in a crisis or emergency

situation and they needed the hospital

to keep them safe the second kind of

patient were those who had some sort of

disciplinary issue perhaps they acted

out gotten in fights and because there

was a history of mental illness trauma

anxiety their punishment was substituted

for treatment and so their mental

illness in their eyes was seen as

something wrong that they have done and

they rejected their treatment entirely

the Third Kind of patient is a little

bit harder to just sum up these are

those who perhaps their behavior becomes

frightening to those around them

remember one patient a few doors down

for me a young boy who for hours at

night would scream and scream before he

went to sleep begging voices to stop he

was diagnosed with schizophrenia and

because there was so much fear and lack

of education for what he was

experiencing society kind of casted him

out and he would come to the hospital he

sedated go back home to the hospital we

sedated it was an ongoing cycle and what

these three patients have in common is

they have to come home and they have to

ask themselves what on earth do I do now

where do I go from here maybe their

parents are asking for them because this

way

an adolescent program I have a hard time

answering that question in fact after I

was discharged a few weeks later I was

readmitted and then after that put into

an all-day outpatient program and then

after that was enrolled in a government

program which had someone in my house

nearly every day there was a respite

counselor a case manager a therapist and

a psychiatrist now granted this was a

time in my life I needed this kind of

supervision I needed to be heavily

watched and I know my family is

tremendously grateful for these

resources that were made available to

them and I don’t take that for granted

however there was a problem with my

treatment I was very aware with what the

world saw when they saw borderline

personality disorder

this was my diagnosis I was so aware of

how those people were treated how they

were portrayed in society that I

rejected my diagnosis completely I

didn’t talk about it I didn’t share it

with people

nor did I even try to embrace it for

myself I didn’t try to understand it

instead I was encouraged to kind of shut

it down stop showing it so much me and I

also knew that I could get away with

things I can get away with moving on in

my life if I just didn’t show the

symptoms if I didn’t act out I kind of

kept masks on and this continued so much

that when I was prescribed anti-anxiety

medication I was prescribed xanax I

formed a habit which turned into a

dangerous addiction and what this did

for me is it didn’t allow me to face my

diagnosis it didn’t challenge me to take

ownership of treatment I just shut down

I was in a sleep-like state I was a

zombie and I wasn’t feeling things at

all

forget about with my mental illness I

wasn’t feeling even the most normal of

feelings so how am I supposed to heal

from something if I’m too numb to feel

what I’m supposed to heal from and this

went on for years and progressively got

worse and

into college we’re on February 20th 2013

I attempted suicide and I was stopped by

a bystander I tried to throw myself in

front of a train and someone on the

platform stopped me and immediately I

was put back in the psych ward

this time adults and I saw the same

three patients just in adult faces there

were those trying to be safe like myself

those who are being punished because of

something they’ve done and those who

were totally ostracized from their

communities so what I did during this

time as I started to write and

eventually that gibberish turned into

poetry like the one that I just

performed for you but everything was

turning back on I was getting off the

drugs I wasn’t taking anything anymore

so everything that was shut off for so

long was going back and these wires that

the electricity was flowing through was

frayed and static was kind of flying

everywhere the only way I knew how to

ground that static that those jolts and

shocks that I felt so severely at this

time was putting everything on paper I

wrote down everything I felt everything

I saw and this was my way to begin

dealing with my diagnosis to begin

so what I realized since that time is

that all my efforts to be filtered to be

contained to be held back to keep suit

and pull it off has been keeping me from

healing mental illness whether it be

borderline personality disorder

depression anxiety they’re not talked

about they’re not invited into our

conversations instead we often make the

mistake sometimes out of fear of

encouraging

young people who begin showing signs of

mental illness to hold back to stop

acting that way

pipe down calm down let me just say

being told to calm down when you’re

anxious is probably the least calming

thing in the world but it comes out of

fear it’s something different so we want

to just stop it that urgency is there

and it’s become so hurtful to those who

deal with it rather than silencing those

who deal with it kind of putting them

back in the margin of what is normal

what if we gave these people a

microphone share their stories what if

instead of telling them to be quiet and

turning off the voltage completely what

if we redirect that to power something

new and power something innovative and

great what if instead of stigma and

shame that we attach to mental illness

mental illness is complex there’s not a

simple answer there’s not this or the

other but when we’re looking at

treatment it involves so many things

vaults community it involves a creative

aspect the way I have found it involves

being held accountable folks so many

facets and when we shine a light into

those darkest places within these facets

we have a true honest chance at

achieving mental health but there’s some

things that must stop in order for that

to happen we must stop as a society as a

whole those with mental illness and

those without to think that it is as

simple as taking a pill like you would

an antibiotic and getting the virus out

and then you’re done a lot of times when

I share an anxious thought or something

that’s inside me with a friend I’ve

heard a lot of time

it’s all in your head why yes it is all

in my head it’s in my brain it’s in the

way I receive information the way I make

connections in the world the way I

comprehend life that is my brain and

science has come a long way we’re not

doing lobotomies anymore but we have a

long way to go

well there are MRI scans that can map

out brain activity and we can capture

wavelengths we haven’t really scratched

the surface on the anatomy and the

neurology of mental illness and while

yes serotonin plays a role in something

like depression so a lot of the

antidepressants that are prescribed have

serotonin that’s one part of my brain

that needs that chemical and now my

entire brain is saturated with that

brain what are the lifelong implications

of that I take a pill every morning that

I know helps me get to school and get to

work and keeps me going but what is that

do 30 years from now how does that help

me own what I experience and how do I

get past that to really achieve health

now I’m not suggesting at all that these

pills are bad and that we should just

throw them out and say to do with it no

because I know how helpful and

life-saving they have become for me and

other friends but it’s not enough it’s

not enough to just say it’s a pill quick

fix your symptoms are gone because

you’re muted you’re better because

that’s not the case and it concerns me

that the imbalance that my brain is

experiencing is not tested there’s no

way to pull out fluids in my brain and

test your imbalance and say okay this is

how much you need this is there’s no way

to do that and it concerns me that when

I go to the doctor for a sore throat and

they see these medications on my chart a

stigma tells them to immediately take me

less seriously and it concerns me

that if I go to a friend with an anxious

thought with my depression I oftentimes

get the response before even a word has

spoken have been taking your pills

instead of having a conversation with me

and allowing those emotions to be valid

it is unhelpful even dangerous to view

mental illness as something that is just

curable and something that you can treat

symptoms that will just go away this is

really detrimental to not only those who

experience mental illness but to those

trying to help it leads us to a place

where we want to shut things off instead

of really moving and through

understanding what it is that my mind is

going through the way my mind works yes

it’s different from you but that does

not make it invalid that does not make

it unworthy I don’t take xanax anymore I

do not take the drugs I use to kind of

numb me out and get through things but

the emotions the thoughts that led me to

that place

they still come I still have to deal

with those so even though I’m not acting

in a certain way right the symptoms

don’t show I’m still dealing with my

mental illness because my brain is wired

that way

and not perceiving the world in a

certain way that’s causing me to feel

and think this way and you know what

there’s power and feeling too much

there’s power in seeing the world

aligned with patterns and there’s power

with wanting to maintain those patterns

sometimes and yes sometimes it is so

much and it is so big and it overwhelms

me in it I feel like a threat to myself

I feel I might hurt myself because of

all this but maybe it would be less

hurtful if when I went to a friend when

I tried to work out what I was feeling I

wasn’t hit with stigma

hit with the impulse to just stop just

stop thinking like that I think it’s

time

those with borderline personality

disorder OCD anxiety depression bipolar

whatever it may be that we share our

stories that were given a platform to

share you know I have been given a

platform and I have been able to work

through the way I think the way I feel

because of a university that embraced me

and I was able to finish my degree and

now I’m able to move on and get a second

degree I’m being embraced I’m getting a

platform to that I can use the way I

think I can work for organizations that

want to see the same change in the world

and want to use my skills and talents to

bring that change about but if we don’t

give people a platform if we don’t allow

them to think the way that they do and

we just mute them shut them down how is

that change ever going to happen how is

that healing ever going to happen some

of you are gonna go home and you know

someone maybe close to you who has

mental illness of some sort or maybe

you’ll meet someone a year a few months

some weeks from now maybe you are that

someone if you are that someone your

thoughts are worthy and you are worthy

if you have that someone in your life I

urge you listen don’t try to shut it off

because it is not like you don’t try to

push it away because it’s so different

encourage them give them that safe space

to move through this and let’s make

those places in our society let’s make

those spaces in our communities where

that source of power is needed that way

of thinking is needed to build something

new and give those people a platform

give them a microphone just like I have

been given today thank you [Applause]

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