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L’UMANITÀ DELLE NATURE IMPERFETTE | Marco Menegus | TEDxReggioEmilia


[Music]
to try and get you into the world
of the imperfect nature of which I want you
speak
I will try to tell you what
it happens in a minute of the life of
every human being in a minute yes
they take 12 to 20 breaths
breathe an involuntary act and that
It is done by all of you without anyone
effort and without paying attention
maybe you pay attention because me
I’m talking about it
for some people like for me to breathe
instead it has always been an act to me
I had to oblige and give a necessity
that my body claimed and that I
I had to color with every three times
seconds
try to imagine yours
breath is burdened by a stone on the
chest and air you are looking for
to breathe is not a transparent fluid
and impalpable but we know something dense
sticky like mud this was for me
breathe for most of mine
life
a sentence a fatigue a prison
without the way out that was repeated
equal to itself but every time more
harder harder every three seconds 20
times in a minute about 30,000 times in
one day for a perpetual motion and
absolutely without a chance to
remission of the idea of ​​imperfection that
I would like to communicate to you is inherent in the roots
deeper than our culture that
It dates back to the Hellenic thought of Hippocrates
fifth century forward christ founder
of western medicine up to
get to us
this data is imperfection and is an idea
radical different from that of disease
it is theorized that nature wants
operate its perfect product that
man but has one in himself
intrinsic contradiction because the
matter that uses caduce organs
muscle cells are all destined to
an end for which the project that
he would like to be perfect he has his own
intrinsic imperfection within myself
I am suffering from one birth
genetic disease called fibrosis
cystic is a degenerative disease and ad
inauspicious outcome I will move there is no cure
said so can be one
exemplification of everyone’s life
all of us all of you
born, you live and die
the difference in less in people like
me who have a imperfection in tone
the greater is that we make it more evident
this imperfection that the transience
my life proceeds at a different speed
and greater than our why or not
time available and above all the
sense of transience is more evident and is
more sour and purifying
I believe that the essential need of
every man is freedom
freedom for me and this is space
space in which to move the
disease that I compare with from
birth demands great daily
sacrifices and imposes very large lipids
so it is an antithesis of freedom
I have not been free because I am
was bound by constraints from the limits
of my body and I have not been free
because I spent a long time
of my life at the hospital I am 47 years old and
all the period is put together
the periods in time I spent in
Hospital
maybe I spent five years
inside a hospital room
I spent more time at home
doing limiting therapies attached to the
infusion pump a machine for the
non-invasive breathing
the last part of my life of
harsher comparison with the disease
when the disease had arrived at a
terminal point
I had to do an internship in therapy
over 24 hours for over a year are
was plastically linked to a
object that was a cylinder at times
two oxygen tanks a tube la
mask when it was related to these
I had at most an autonomy of bottles
an hour and a half to go out
at home on less harsh days with
those in which I needed to reiterate
myself to know I live I will be able to
times to leave the house just go in
mountain
sometimes I even managed to ski
and despite a limited space of time
an hour an hour and a half is a big one
I win I can guarantee you that I had
the whole world at my disposal is true
all the freedom I could have
desire within this this
air bubble that was contained in a
object on the other on my back
I tried to make it possible and
livable my existence trying to
convey from the outside to the inside
all the best that progress
technological and scientific especially in
medical field was the disposition making
I tried to overcome limits
that my life and my physicality me
they asked if I look around and think of
you to people who are so-called
I imagine you already free I imagine you
already
bearer ourselves of all that is
necessary
I tell you I tried to convey
from the outside to the inside of energy
and power possibilities to expand the
spaces of my freedom and doing this
I drew precisely to the best of
resources in the pharmacological medical field
scientific technician I think to many
you happen to make a journey towards who it is
healthy has a wealth available
infinite that however from absolute for
certain and sometimes intangible and
this can lead to one
underestimation of the reality of the
their own possibilities and their own
potentiality and to conceive a path
inverse of being looking outside
look for something that gives
satisfaction with their own
needs
out of oneself but only in this one
this phase of socio-economic development
of our society that poses creates new
needs outside of ourselves
healthy people who are brought to give for
discounted your health
externalizing to these full needs
they certainly do it in absolute good faith
and also with a degree of awareness
I think maybe sometimes but cost
they believe they can govern this
mechanism and to use technology
for your own satisfaction but you do not
realize that this way
to the iran part of their freedom
I’ll give you a very trivial example these
they are my mountains
I started climbing and climbing the
mountain with mountaineering skis more than
30 years ago
thirty years ago there were no means of
communication and laptops we left the
morning we returned in the evening or the day
after it is the only one the only way to
communicate for example with with home was
a telephone from a mountain lodge
were the same the difficulties were the
the freedom with which you are
I faced certain spaces I think
they were the same
today everyone turns like phone in his pocket
in the city ​​the mountain function telephone
they transform works almost never be in
mountain have a phone can not do it
use reduces your freedom instead
that expand it because I know that mine
wife who at home waiting for me if not
hear if you do not hear me worry I have
an instrument that should make them
free and I invest something on him
it actually reduces my spaces to
freedom and the areas of freedom
my need for large spaces comes
limited by something that is a
need driven by a technology 30
years ago I could stay out one day
whole without feeling in default in the
comparisons of those who were waiting for me at home
today if for now I know that I know a deadlock
of reception I feel no longer free
this can happen and it is a
an alienation of own spaces of
freedom that is the opposite of what
We should will and duty to do I do not
I can be a radical critic and tukur
of technology
I live thanks to technology I told you
to progress the scientific doctor
to the evolution of drugs above all and
I have six operating techniques
one and a half years alive thanks to the transplant
bipulmonary which is apparently the
just result of the best of the
surgical technique currently
existing resuscitation techniques of
regeneration conservation technique
of these exploded organs
technologies exist technology is
neutral takes on meaning and one
valence only in its application
technology is not something that has
a reason in itself though
in appearance it is sold for this reason
this is capable of generating needs
induced to unnecessary I tell you alive
thanks to the bipulmonary transplant thanks
to the skill of a surgeon and thanks to
an infinite series is enormous of progress
the scientific doctor but all this
it would not have been enough in the
necessary neither useful nor applicable if
before all this there had not been
the gesture of a man who has decided to give
something to another man
two men at the end of my life
after a long illness and another man
that at the end of his life arrived
by chance and province a bit of destiny
these two humanity could merge
and make sense meaning
necessary for a technological process e
that’s why I imagine the feeling
current humanity as not a whole
not of the whole generates generalized
of men I always think of man
as the other from the wing the person who
I can see the other part of me
better than me, he knows that my wife is irene
here we were two days before the
transplantation call with oxygen
and the flowers one is my wife the other one had
I do not want to know why I did not know about them
dark this summary in the mountains with
the oxygen the other from me are mine
mountain companions who have me
always encouraged to be better and more
strong of myself and overcome mine
limits and they imposed me to
compare myself with the limits that are
the high mountain is absolutely objective
one meter or four thousand meters is the same
for everyone it does not grant any
differentiation arises in way
absolutely free and neutral in
compare who wants to get in
this photo is with my double it is
a transplanted friend and if you look good
we are four of us and two
people who have decided to afford us
to live again for this I want to tell you
one last thing on the transplant and on
what can I mean? I know nothing
of the person who donated part
of seat the nameless man who breathes in
when they are called they know each other
only sex age at height for the
morphological characteristics
I am one of you but you have today
listened to his voice because remembering
welcome each of us
they breathe and the air that moves them
vocal cords
I know nothing about him but you have
listened to his voice today this is the
my last mountain and my 4000 meters
dedicated to the man without a name
breathe it this is my thought yes
born not only to die but for
walk for a long time with feet that do not
they know dwellings go beyond each
the humanity that will always be will be alone
made by the men who will know
to recognize beyond the greatest e
more bombastic more enormous progress
a scientific hand between a man and a man
another man
Thank you
[Applause]
[Music]
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