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Living with Tourette’s: How my Disability Became my Strength | Brian To | TEDxUCR


hi welcome to Starbucks how may I take

your order can I get a ice

coffee extra ice light

on the whipped cream please are

you okay sir what’s going on

imagine having to explain yourself

everywhere you go every morning even for

a simple cup of coffee well that’s kind

of like house that’s kind of how it’s

like living with Tourette’s Tourette’s

is a neurological disorder characterized

by involuntary and repetitive behaviors

these behaviors are defined as ticks

ticks can come in two forms

they can come in motor and it can come

in volcko some examples of motors tics

or when you shrug your shoulders or you

can’t control your twitching a couple of

vocal tics that you may have is you know

shouting out obscene words in the

general public and the cause of

Tourette’s is still unknown to this day

but it is found that through research

Tourette’s is hereditary so shout out to

my pops right there for this amazing

but I’m willing to bet that many of you

guys have never encountered a person

with Tourette’s let alone maybe not even

hear about Tourette’s but it’s actually

very common recorded data one out of

every hundred kids in the US have

Tourette’s

but how are you going to tell me that

when I’m sitting in a lecture hall

there’s 500 people and if I’m doing my

math correctly shouldn’t every five

people have turrets but how come I’m the

only one dropping f-bombs and cursing

out the teacher in front of biochem

lecture hold on if you know me you know

I don’t even go to a class so I’m just

joking I’ll get I’ll get back to that

later all right

but disabilities are often seen as a

taboo subject they carry around this

negative stigma everywhere it goes the

first time I was introduced to

Tourette’s was when I was on a date it

was in seventh grade and I was going to

the movies and we watch this movie

called the 500 days of summer and in

this movie there was a couple who the

main characters they were going through

on the park on a little date and there

was this old man who sand the grass and

as the couple was walking by his old man

said please and oshi I was scared too

don’t worry but I didn’t know what it

meant when I tell people I have a

disability

and I tell people I have Tourette’s

people think that my life is just just

one big mess and it’s really not to be

honest but it’s it definitely hasn’t

been a walk in the park

and when it comes to Tourette’s it’s

really about the little things that you

encounter the little frustrations their

little smiles you get the little cries

the little failures even the little

jokes all these low experiences that

build up to make up this big special

journey let me walk you guys through my

childhood you guys will see where I

really mean it all started when I was

about 10 years old I was shrugging my

shoulders I was twitching uncontrollably

and my mom saw it but my mom never

really cared she thought I was being a

little kid but then there was one

particular weekend I was on my weekend

ventures with my pops and we went to

Sears

there was a there was a sale for hammers

and we were walking through the aisle

and out of the blue and my dad looked at

me say well what the hell are you doing

I said I don’t know I I don’t know I did

and then two seconds later yeah no I

know my dad’s like all right you got you

got shut up cuz everyone’s looking I was

I swear my dad was about to take one of

those hammers and nail in my throat to

make me shut up he brought that like he

was trying to kidnap me or something you

know but as we went home weeks went by

it’s not to get worse my nose got

frequent my noise got even louder so my

mom said all right let’s go

let’s go check it out let’s see what’s

up so we spent the next two years going

to different doctors from doctor doctor

medicines and medicine misdiagnosed the

misdiagnosis you know it got to a point

where my doctor just gave up he said I

if you throw so he’s allergies and I was

like what am i allergies he’s like here

just take some claritin and we all know

Clairton ain’t cheap I went to go see a

neurologist and after many tests he

diagnosed me with trance he looked me in

the eye and told me I can cure you and

to me that was the best words that ever

came out of his mouth at this moment I

was transitioned to high school I was

starting my freshman year our Harbor

high school I came in with big dreams I

wanted to be basketball superstar I

wanted to be a musical prodigy I wanted

to be prom king ASB president I wanted

to be the popular kid but little did I

know my life was about to go downhill my

doctor never had the time to tell me

that there was these side effects that

came along with Tourette’s to name a few

insomnia fatigue dizziness nauseousness

drowsiness depression so I do what he

did he I did what he told me I took the

medicine within the first six months of

taking medications I gained 50 pounds 50

goddamn pounds

and this led to me getting kicked off

the basketball team and that was you

know the first struggle big struggle I

faced I went day to day feeling tired

feeling sluggish as I woke up every day

and so I spent my class time sleeping

okay and we all been through high school

most of us and we know that we were just

looking at the clock waiting for the

time to tick down I was different I

wanted to appear to keep going because

once that bell rung that means I had to

get my ass up walk to the next class

across the the school just to put my

head down and go back to sleep but

throughout the years my symptoms got

worse it got to a point where I was just

trying anything anything to to get rid

of my problem and this was a time when I

started building up depression I found

myself laying in my bedroom

side to side rolling around you know

waiting for time to pass the biggest hit

that took was my self-esteem and my

confidence let’s not even talk about the

dreams

let’s just focus on trying to graduate

high school trying to get to college

just worry about that first because that

was my biggest issue and at the time we

pretty much gave up on that neurologist

he told me you know I can’t help you

anymore

I’m not saying you to another

neurologist so my mom my grandma my

whole family we went out looking for

different ways to to kind of help me I

remember a time when my mom got so

excited because there was a monk

something some lady from Vietnam who

came over and what some needles in my

body you know I tried to do some

acupuncture that didn’t work okay and

then I also tried going vegetarian you

know how hard it is to go without a

burger for two years that was like a

bigger struggle self alright and let’s

talk about this one time um this one guy

I guess he’s called some Chinese doctor

he came and he squeezed like parts of my

body I got pretty uncomfortable and he

told me I had he’s you know he said in

Chinese I didn’t understand we started

shook my head said okay cool so he mixed

up this little magic potion of his it

was black

and you know it’s gonna be like some

kind of you know sweet drink like a

coca-cola I opened that pouch took a sip

and I spit that out let me tell you

that was as dark and bitter as ink

so high school was coming to a close and

luckily I I got into a couple of

colleges which I finally chose to come

to UCR but there was this um one

particular weekend two weeks before I

was about to graduate high school and

with all these frustration and

depression that has built up I called a

family friend of mine and I said hey we

need to talk I need something so the

next morning early morning 7:00 a.m. he

picked my ass up and took me to the

local restaurant it was called JJ cafe

and we sat down we had our little bowl

of um pork porridge and he said what’s

up man what’s going on what’s wrong I

told him hey Ken I failed

um I’m a failure he’s like what you mean

you failed man just like I told him I

did not accomplish anything I wanted to

accomplish these highschool dreams there

he a history there you know he’s these

aspirations I had these big dreams these

big goes they’re pretty much gone and I

lost man I lost you know and I was I was

waiting for something you know

motivational inspirational he looked at

me and he chuckled he left two minutes

later he looked at me and he said look

Brian you got this issue of yours and

whether or not you choose to accept or

not it stuck with you for the rest of

and you’re trying to go out there and

blame everybody for it blame your mom

blame my dad blame your family blame

yourself

blame the issue itself you busy being

hello bitch I was like dude I’m crying

but what he told me was that you got

something special all right and if

you’re able to take this situation this

little issue of yours and you’re able to

you’re able to overcome these little

struggles man you’re gonna go out there

tell your story inspire people what you

got is something powerful you just have

to learn to embrace it so there are

worse you know ignoring everything he

said because you know I was graduate

from high school you know and two weeks

later I graduate I walk the stage get my

mom dad hug and that was embarking on my

new journey at UCR this time I came in

with positivity looking for a new

beginning a fresh start but let’s be

realistic here my first few quarters it

was hell I still struggle like every

other college kid but then as these

obstacles start coming these these

challenges start coming my way and I

start you know handling them and kind of

persevering through them I started to

see what he meant there was so much of

these little beautiful lessons that I’ve

learned from each and every obstacle

each and every failure and I’m not sure

a couple examples with you because of

this vocal tics that I encounter when I

go order coffee I’m always cussing out

the cashier but because of that I’ve met

great friends who have become my big

brothers

I’ve worked on my social skills through

that I’ve been able to gain my

confidence slowly and surely music piano

specifically was always something that

got me through dark time

during the press rough times I just

pawned those headphones and play my

heart out because why it took me to an

escape where I was just able to let free

but then I started to use it and use it

to to to a way to inspire people I start

going out there reaching out to

organizations I performed all around

campus the belltower events wedding

ceremonies I even perform fetch the

Chancellor of UC our remember how I told

you I gained of fifty pounds look

doggone I got that six-pack now I’m

ready for summer but I struggle with my

weight for the longest time I I don’t

know how many diet programs workout

programs I try it got to a point where I

was trying diet pills these green tea

extract things that were proven to lose

to make you lose your belly I don’t know

I tried everything but what I realized

is you know if I love basketball and

basketball made me feel competitive it

made me feel powerful and I’m going out

there and I’m playing basketball in a

way that made me lose weight and gain

new network opportunities I even got

myself on an intramural team this arm

this quarter and I’ve I’m playing

tomorrow actually so you guys are free

come out come through and watch I’ll be

on the bench just remake Gatorade or

something but look although I have made

progress although I have stepped it up

I still struggle day in and day out

everybody out there I’m sure you guys

got young struggles all right you guys

got family problems wife problems yes

got job problems you guys are showing me

to get into medical school with a 2.0

medicals going any for me but look I

have no right to say I completely

understand how you feel cuz I don’t

you’re in your shoes I’m in my shoes but

we both dollars all goes here

and hopefully from my story from my

journey you can take that and apply to

what you’re going through whatever big

obstacle you’re going through I

encourage you to look deeper into the

the little true beauties that lighting

within the lessons learned the hidden

blessings even the fun jokes that you

know come along with the ride I

encourage you to all to who embrace your

struggle embrace your failures I want to

end with a quote from a very special

person of mine my grandpa

passed away three days ago and he always

told me as we’re sitting on the porch

waiting for my mom to come back from

work he said look Brian your money’s

your goal it’s your jewelry’s your rings

you know anybody can take that away from

you any time any moment a day somebody

can steal all that take that away from

you but you your hard work your

commitment your dedication the legacy

you leave the moments you put yourself

in ain’t nobody ever taking that away

from you and I’m standing right here

with the light shining down on me this

so look when times get rough when times

get rough and you feel like giving up

you feel like falling and never getting

back up you just gotta remember just

keep walking one foot in front of the

other keep walking

because you will get there [Applause]

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