Press "Enter" to skip to content

Dis-ability and super-ability | Maurice Grinberg | TEDxSciencesPoCampusDijon


five years ago there was a lady who came

in my office University our lab at the

Department of cognitive science and

psychology and asked us to help her we

were a little bit surprised because we

have been doing at the time fundamental

research using eye-tracking bio

recordings and other type of devices but

she said we are the only people in log

area who knows something about eye

tracking and so her son had cerebral

palsy and cannot use his hand you know

speak and she said you must help us

because in Bulgaria nobody cares about

it nobody knows about it so this

actually changed our lives three years

later when we founded the NGO which

promotes and popularizes hydrating based

assistive technologies and also other

high-tech technologies in Bulgaria and

it was not planned in our lives with a

colleague of mine and we are now

crossing Bulgaria and doing campaigns

seminars and so on and so forth and we

saw a lot of problems out there but we

met also wonderful people wonderful

children this is dieter who is the son

of this lady this is Alexander who

turned out to be the first user of such

technology in Bulgaria starting nine

years ago but normally could help him so

his family basically was doing and he’s

going now but they can then he is

some acquaintances of us it’s a great

pleasure very inspiring for us because

she’s extremely smart and Angela

pendulum who started with us from the

very beginning because she’s actress in

the theater at the new began University

for disabled people so she was the first

to come into our office and she started

writing right away using an eye tracker

and watch her all the first time was

when people see me they think that I

don’t have feelings and I don’t have

opinions that this is not true so it is

very important for these people to have

access to such type of assistive

technologies so this group of people

including so famous and well-known to

use even talking is a group of people

with severe physical disabilities some

of these people are not so well

cognitively which is not a problem at

all but some of them are not only

preserved cognitively that are at a

higher length of the IQ spectrum so

Stephen Hawking is one of the famous

users of try technological assistive

technologies using muscle of his cheek

and using a device with a scanning

facility which can write again there are

stories about black holes about the

universe but also recently about the

dangers of artificial intelligence and

so people like that are really millions

in the world so this is just about

disabilities more than 750 meters

globally but of course disabilities can

also be minor continue to age and so on

so forth but still there is a group of

people putting aside people with

blindness or deaf people there are a lot

of diseases and conditions that are

unfortunately statistical they can

strike anybody and some of them are

related to excellence so all of us can

more or less be victims of it and of

course we always age and Creed age

our problems and disabilities coming so

you can see how many of them so cerebral

palsy I mentioned it already but also

the autistic spectrum the spinal cord

injuries which are lead to accidents to

sportrack two car accidents muscle

dystrophy affecting children mostly male

children and ALS amyotrophic lateral

sclerosis so-called Steven Hawkings

disease so put together all these

diseases give about 2% of the population

all in the area there are 145 thousand

people with it fortunately some of these

disabilities are minor but of course

within this group there it is 7,000

people proxy making which needs

assistive technology advanced assistive

technology in order to be able develop a

dog to communicate with their parents

and friends around so what is done in

the field of assistive technology there

of course prospects that are really out

there for instance the prosthetic eye

which is something developed by several

companies this one based on the research

wonderful research by shield Nuremberg

who could crack the code of sending

signals between the human retina and

rain so now this can be substituted by

camera doing the same job and doing

creating a very nice stuff and more will

be with this type of assistive

technologies like for instance the skin

tracker where the movements of the head

you can control computer mouse or if you

cannot do that you can put this into

your mouth with your tongue you can

write the text or you can again control

computer or with your finger the one

that you can move over very often people

just one finger and the more fashionable

and already on the market

brain to computer interfaces Missy is

that the law as it’s usually advertised

to write with your thought it’s not

exactly like this but still this is

something that allows people who cannot

move even their eyes unfortunately

they’re subject cases to write and

communicate with others and this is of

course very important for people who

have physical disabilities there are

solutions that are starting merging by

the exoskeleton so this one is within

the mind worker project of University of

Twente so its control with I guess so

you can control your movement by moving

your eyes but also by a brain computer

interface where it can add because this

is for people who are fully paralyzed so

in a sense in order to make these

movements they need to have conscious

commands about any of them these

movements so this is something that also

is developed more recently cars for

white people

of course smart cars probably are better

but still discuss transformed signals

from from the environment to signals

that white people can receive through

their to these gloves and through the

special devices that are mounted on them

and even more recently enhanced learning

by stimulating the brain based on the

brain of people who have a skill so we

can stimulate a person who doesn’t have

this skill when you grow very much

training and learning so there are

examples although relatively rare of

people who help by such assistive

technologies can lead relatively normal

lives and catherine lammle

is one such example she uses an eye

tracking device which is mounted with a

computer which is mounted on her

wheelchair so she has a bachelor degree

already she’s the

master’s program she has a website which

is promoting assistive technology a

consultancies for people with

disabilities there are also sorry CQ who

is a painter and she has ALS Stephen

Hawking’s disease and at some point she

was completely paralyzed she could not

talk but still continue to paint with

her eyes and you can follow her on

Twitter and see watch things about life

she is also selling her paintings and

helps people with the same disease with

the earnings from from these lenses and

Angela Bachelor Bulgaria who I mentioned

she’s arrived she wrote a book about her

life in very difficult conditions using

just her left thumb

she could move with a lot of

difficulties but still she did it she’s

really with a huge wish to express

herself and at the same time she’s for

an actress and maybe the first actress

of the world using a sistah device

networking you can see her with a

well-known Bulgarian actress young

marine over in a play that is based on

her autobiographical book my life having

a left thumb and you can see her working

demonstrating the capabilities of this

eye tracker which is here for her eyes

so with her eyes she’s using this screen

mouse of reason she selected here

scrolling the scroll silence here when

she looks up she goes up when she looked

up under this sign she goes down so now

she’s praying to complete her high

school studies because she couldn’t do

this when she was young she is now 49

and she probably doing because

she’s doing this very systematically and

here shows all the capabilities of the

itraq in the system technology which is

very mature at the moment so the price

is not very high you can basically work

with Windows and all the software which

is there and there is also software

which is adopted for people using their

eyes because it’s a little bit more

difficult than using your hands so I

want just you to pay attention to this

weight here with the rope

I don’t know if you can see it so it was

used when she was typing with her left

thumb

because she needed to make common key

combinations for instance shift for

capital letter or control she just took

this way and put it on shift or ctrl and

then pressed the respective button and

she wanted really to write corrects or

use capital letters which which is

amazing so this is Alexander I presented

you before the first user who is a gamer

he’s playing games computer games

surfing the web but he has seen

difficulties in writing so his parents

are preparing some exercises for him so

his gaze is the red point that you see

here and there he’s selecting an object

here it’s pronounced you can hear it

here and he must write it using the

letters so you see the gaze going here

and there dizzy yet record and after

completing this it’s a difficult work

because there are lot of consonants in

it he will check it and then the

software will give him feedback about

his achievements and this is Annie

who started working with such a device

this year and it was her mother actually

took care of her very very well and she

was trained on a tablet with good model

basically how

kans and selecting different options she

started playing again she seeks to pay

right but at the beginning of being

presented with this device she’s six

years old

it turned out that she can count she can

write her name with her eyes using a

keyboard and we hope that she will be

general school next year because now she

has such a device with her

so all these examples are a little bit

on the side of access to computer

education professional future

professionals on and so forth but

besides all this great opportunities

resist it acknowledge if the right

communication is a central one and

people who don’t have these problems

they underestimate the possibility to

express your feelings to say that you

disagree with something and to be spoken

to because sometimes people spoke to the

assistance of these people because they

think that if they cannot talk they

don’t have any opinion or anything to

say so this is important and of course

all this is already in the UN Convention

on the Rights of persons with disability

where all the rights people with

disabilities are expected to be granted

but of course you know to be able to

realize is in life which is not the case

you need more powerful assistive

technologies and this more powerful

assistive technologies in general must

be based on the result revolutionary

advances in artificial intelligence and

robotics which are some of them there

are some of them are expected to occur

so these are all the brain projects

human brain projects Google brain they

try to understand the human brain by

simulating it so there is some

expectation that by 2050 the human brain

will be understood at the molecular and

so if this is the case then some people

already are prepared to be worked on in

the future

uploading their consciousnesses into

computers so one of these stinkers ray

pulls fellow who drawing down the term

the singularity point this is the point

when AI will be as powerful as as the

human mind and so at this point they

will be like instead of doing problems

which are potentially dangerous probably

we must against ourselves and achieve

happiness by superpowers that that you

might we might have and all this is

great so remember that the timings but

many people are afraid of this progress

and recent studies show the sixty

percent of people are scattered is

scared of this huge development

including Stephen Hawking who in a sense

is interested in this in this

development and movies kind of sustain

or express these fears of people in

different forms but let’s come back to

the documents the strategies that exist

right now about people with disabilities

so all these documents they mention

people with disabilities their equal

rights and they hear that these people

have the same rights as everybody else

but on the other hand if you read these

documents you’ll see that the Cystic

technologies are mentioned as something

that of course is mean that should be

there but nothing else as much and it is

obvious that it is not enough and this

is the case because there are models

behind all these documents models of

disability as I said though and these

models start with that with the medical

model of disability which is the first

one pretty disabilities as diseases as

something that must be cured these

people as patients that require

specialist

simulations and so on and so forth so

fortunately this model is not more used

and at first it was substituted by the

social model it is going a little bit to

the other extreme and painting that any

disabilities basically do to society

which puts barriers in front of these

peoples or disabilities do not exist if

you take some measures if you have

appropriate transportation access and

assistive technologies and nowadays

there are more balanced more the way the

one of the World Health Organization the

bio psychosocial model which accounts

for all the spectrum of needs and

conditions and situations but of course

it’s not so widely used in practice and

also we have the so-called human rights

model disability that is behind the

Convention on the Rights of persons with

disabilities

so what is the next model so I would

suggest I would advocate for a so-called

transhumanist model disability

transwomen is coming from the idea of

enhancing human capacities which is

something that is coming when of course

it seemed that this is consistent with

the opinion of still talking in another

context and in order to do so what is

needed of course is formulating this

model and get the right documents so

that at some point the people I

mentioned today like on you like deter

life Alexander have a future because now

there are teenagers or children so what

will happen to them in 10 years or 20

years these are exactly dears this

children’s in AI that will be there

available so then you will be like in

order for them to benefit from from it

all this type of work has to be the dis

model these models have to be formulated

these documents has to be

strategies have to be changed because if

we refer to ban ki-moon said when he was

Secretary General UN some time ago for

the strategy of the equipment

development in the next 30 years he said

we are going on the right path and

nobody will be left behind meaning

people with disabilities so I would say

that in order for this transition to

transform a needs to be really

humanistic really successful the people

with disabilities must be put forward or

at the center of these developments and

all strategies needed for that must be there based on transhumanist molar of

Please follow and like us: