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Deaf and Destined to Bridge the World | Isidore Niyongabo | TEDxSDSU


um hi hi yeah I go ahead no that’s fine

yeah

you guys are alive right we’re alive

tonight let’s go anyways I wanted to

pose a question for you guys how many of

you guys have met a deaf person before

all right not two about about half how

many of you can imagine what it’s like

to be deaf in this world I want to let

you guys know I was born like you guys I

was born a hearing person I remember

being a little kid I remember enjoying

hearing all these different sounds

I remember hearing the bird singing in

the morning I remember the sound of the

river I remember the sound of rain and

lightning

I remember the chickens and the goats

and the cows and all the different

noises that I had experienced as a

so life was beautiful I went to school I

talked I danced until about the age of

10 I remember I was in class its fourth

grade and my class suffered it was

horrible for three months we didn’t have

a teacher and I remember we were

supposed to our new teacher was supposed

to show up this this particular day and

I’m so excited to go to school and learn

but um my head my body my energy was

really low I I had this horrible fever

and I was dizzy and I couldn’t focus so

the teacher ordered my cousin who

happened to sit next to me to take me

home my cousin helped me arrive back to

my house and I was done for I was really

really sick and my grandparents called

my father to come see me and he rode

over on his bicycle and he he took me

home back to my parents home I remember

the next morning I woke up and gosh I

just had a hard time hearing anything

I called some my mom I was like mom I

can’t hear anything

and my mom said Oh calm down son we’ll

go to the doctor tomorrow we’ll be fine

so I went to bed Friday morning I

couldn’t hear anything and it became

worse and worse and worse and my dad

decided to put me on the back of his

favorite bicycle and walk me we walked

to the nearby health clinic I wish we

had hospitals in my crunch in my country

but Burundi at that time is just tiny

and there you know there was no 911 no

ambulances to come pick me up we had to

use whatever we had so my dad used to

bicycle the nurse at the clinic looking

me over and said you’re fine and she

gave me fever medication she said she

said I’d be perfectly fine so I went

back home it was a Saturday and then it

was a Sunday and I felt so horrible I

remember waking up in in the morning and

I was so cold in the bath I couldn’t

even stand I couldn’t even really sit

anymore so bicycling wasn’t an option

for me so my family called our neighbors

and they used our method by which we

brought people to the hospital they put

me on a stretcher with two wooden dowels

and four men on each corner and laid me

down and they walked me back to the same

clinic again that day the nurse looked

me over and was very direct with my

parents my nurse said your son is going

to die I have no time for dead people

my parents you know respected the

doctor’s prescription they they didn’t

know what to do but my parents wouldn’t

just take me home and discard me so they

brought me home five or six years later

I asked my mom I’m like look mom I still

don’t understand how I became deaf and

my mom said it’s the door you were dead

you weren’t deaf you were dead you were

diagnosed and I was like well fine mom

but why didn’t you go ahead and have a

funeral why didn’t you bury me if I was

dead why don’t you forget about me and

my mom said no is it or you you couldn’t

eat you couldn’t breathe but your heart

became deaf I know the dictionary

definition of deaf is someone who is

unable to hear or can’t hear and I

understand and I respect the concept but

I’m here to tell you that definition

does not apply to me and it does not

apply to any person who is deaf someone

invented that idea and applied it to me

I became deaf but I created a new life I

transitioned a new journey I created new

goals I had a new purpose in life at

that time I didn’t know what they were I

lost my hearing but I believe that I

gained so much more than I had before I

didn’t only I didn’t just survive spinal

meningitis but I also survived more

challenging things more challenging

things that I wouldn’t have been able to

overcome where I a hearing person so

back to my story so much of my family

came around they didn’t know what to do

you know they were audiologists they

were speech pathologists who who gave

their opinions of what they should do to

me at you know my time there was no

really real advocacy for me I mean my

parents didn’t know what to do they had

a deaf son they figured life was over

they went to the doctor and you know

they didn’t know how to educate me and

they had a ton of questions it just so

happens that my dad had a wonderful

sister my his sister-in-law actually who

sent a letter to my dad my dad took the

letter and he handed the letter to me

and I read the letter in the letter said

we found a school for deaf it’s really

really far away but I think you should

take your son to it I don’t know if you

guys I don’t know how many of you guys

as parents would empower your

twelve-year-old son to make a decision

for their entire life to make that kind

of educational decision I don’t think

many people

yeah I don’t know if CPS would come take

you away if you let your kids make those

kind of decisions for themselves but my

parents asked me if I wanted to go to

school and I said yes instantly they

started preparing for me to move to the

school I remember my dad and I we we got

on his bicycle I don’t know if you guys

know to much about Burundi but Burundi

is like a tiny little Switzerland it’s

completely mountainous the entire

country so I remember getting on the

bike with my dad and when it was the

uphills we’d walk together when it was

flat we’d both jump on his bike and we’d

ride together gosh we left home at 6

o’clock in the morning and we arrived at

the school round about 8 o’clock at

night took us maybe 13 hours and I

remember that time it was the greatest

trip I’d ever had of in my life with my

father and it was the last one I ever

had it was them we arrived and I was so

excited to go to school my dad

registered me and put my name in and I

remember it was a Monday a Monday

morning we sat together and he wrote out

a note to me on a piece of paper he

couldn’t communicate with me so he wrote

on a piece of paper it said it’s the

door you start school tomorrow

I believe you can achieve anything you

want in your life I won’t see you again

until Christmas time when I come to pick

month later he was killed not only my

father but also my grandfather and my

grandmother several of my cousin’s my

friends my classmates many of them were

killed during the Burundi genocide that

occurred in 1993 I remember it was

October 21st October 21st 1993 my family

was gone that month but I’m here to tell

you that he did everything he possibly

today I’m standing in front of you guys

and it reminded me again of this moment

in 2010 at Qualcomm Stadium

I received the greatest honor of being

homecoming king of this university not

only was I honored with that but I stood

there and I thought you know my dad

couldn’t be there to witness it but he

sacrificed so much for me to be able to

be there I wish you could have saw saw

me standing here in front of all of

these most honorable students you know

some of them were former Marines that

that served in the military for six

seven eight years some of them had 4.0

grade point averages some of them were

presidents of some of the most

prestigious fraternities on campus and I

was just that little deaf black kid from

Burundi so what I did is I stood started

ASL club here at San Diego State

University I wanted everybody to have

access to my language in this community

and I’m here to tell you I’m excited to

announce that this fall they’re going to

be opening up the program for all

students to take American Sign Language

here but I wish my dad could have seen

me I wish he could have seen me sign so

for his sacrifice for me so that I could

felt like I have the same responsibility

that it’s my turn to start writing for

other deaf people riding a bicycle for

other deaf people so that I can provide

that experience to them again as I told

you I’m deaf and I’m proud of it I can’t

hear anything but I can feel everything

in my day everyday life I function as a

normal person not only for me but I want

to be able to teach dance I enjoy

dancing but at the same time that’s not

where our abilities are limited you can

do so much more if you can really focus

on your inner voice all of you guys have

this idea of inner voice and I want to

talk with you guys my focus in my life

has been to pedal to ride a bike the

metaphorical bike for deaf children and

deaf youth all over the world you know

not all deaf kids have a father like

mine or a mother like mine who is

supportive of their access to education

and I want to do that but I can’t do it

alone

so I started a company called ideal

international deaf education advocacy

and leadership because I believe that we

should invest more in the abilities of

people our our world and our systems are

designed to invest in this idea that

people need to be fixed that we need to

don’t understand why we spend fifty

thousand dollars to fix my tiny little

ears but we can invest even five

thousand dollars for one child to have

access to solid education the world is

willing to spend over fifty thousand

dollars for cochlear implant surgery to

but some people like us you know if we

only invest $500 for one deaf youth in

Africa to go to school for one full year

imagine if we spent all that money that

we’re spending on fixing people’s ears

and we spent it on education instead the

World Health Organization statistics are

very clear there are 360 million or more

those are people who essentially

struggle with hearing so they have

hearing loss the World Federation of the

Deaf did an ad vestigation that said

about 70 million people in the world

communicate using sign language now from

all of those 70 million people 80

percent live important developing

countries and what’s worse is that 83

percent or if you flip the statistic 17

percent but 83 percent have no access to

education at all zero access to

education only 17 percent of deaf people

around the world have access to

education now from those seventeen

percent with access to education only

three percent have access to bilingual

education three percent can you imagine

where are the ninety seven percent of

those people in the world those ninety

seven percent have no access to

bilingual education bilingual education

meaning that they can learn to read and

write in English and express themselves

in sign language they don’t have access

believe that you guys want to change it

I want to change it and I believe that

something I want to share with you

that’s important as well it’s you know

from my experience my journey from a

hearing person to a deaf person I I

believe that all of us on the inside

have this notion of inner voice there’s

a voice within us that calls us to focus

on what’s best for us and for other

people many of you understand that

message but again if you can just focus

I know that we enjoy watching seeing I

know we enjoy hearing and I’m here to

tell you that uh you could become deaf

at any time any of you could any of us

could become blind at any time or lose

our sight but we’ll continue living if

we lose our inner voice that’s what I

today it’s my strong conviction that if

you all can focus on your inner voice

like me I lost my hearing but I gained

the ability to really focus on my inner

voice which called me to advocate for my

brothers and for my sisters across the

world and to share with you guys my

message that deafness is not a

deficiency deafness is not a disability

we’re all different that’s all

we’re just all different I communicate

with sign language I communicate with my

facial expressions I don’t hear music

perhaps through my ears but I feel it

through my body it’s my conviction that

tonight today you all can focus on your

inner voices and with that you can shot

your competencies your skills will shine

and I want you to invest those skills

into what connects us not what makes us

different we’re all different for a

reason and if we bring all of our skills

and all of our talents together I

believe you can help even me join me in

bridging the world one community at a

time thank you [Applause]

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