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How a designer is helping stroke patients to navigate their world | Ben MacMahon | TEDxBrisbane


prior to 2012 I like most people had

never heard of visual spatial neglect

but then in July of 2012 along with

about 60,000 other Australians that year

my mum suffered a stroke she was only 51

at the time her mum stroke was

substantial it affected a large portion

of the right hemisphere of her brain and

as a result she’s been living with a

disability of a sense now at the time I

didn’t know a lot about strokes I was

only 19

I’d only recently finished my first year

of university I knew that in some

instances strokes could be fatal and I

was vaguely familiar with the idea that

many people have had a stroke often have

some form of paralysis but that’s it

that’s all I knew I was about to have a

very steep learning curve with my

brother and sisters our mum lives with

the more common or recognisable effects

of stroke hemiparesis which is the

paralysis or loss of sensation on one

side of the body mobility difficulties

as a result of this paralysis and

significant memory and attention

difficulties but she’s also been left

with a really common post stroke

condition but one that I had never heard

of until she had a stroke it’s called

visual spatial neglect or VSN for short

visual spatial neglect is believed to

acutely affect about two-thirds of

stroke patients who suffer damage to the

right hemispheres of their brains in

particular damage to the parietal lobe

which is the center of our brain that

helps us manage

Sections sensory input and helps us

understand the layout of spaces now

while the majority of people who have

VSN have acquired it as a result of a

stroke it’s important to note that it’s

not a condition that is confined to

stroke patients VSN can occur after any

significant brain trauma think anything

and everything from extreme sports

accidents to car crashes slipping over

and hitting your head on the floor too

hard violent assaults and anything in

between it can also occur as a result of

Alzheimer’s so it’s really very common

but if you’re anything like I was at the

time you’re probably wondering so what

exactly is visual spatial neglect

broadly speaking neglect is a series of

disorders which removes your ability to

properly process stimuli or sensation in

the case of visual spatial neglect it’s

an inability to process visual stimuli

more specifically it’s an inability for

the brain to process what the eyes are

seeing on one side of the world all of

the data is coming in through your eyes

but the brain just can’t process it as a

result people with visual spatial

neglect lose the ability to be

consciously aware of one side of the

world around their bodies most commonly

this is the left-hand side now the way

that VSN works it’s not like you’ve got

a split down your visual field it’s not

a blindness your eyes are working

perfectly fine imagine instead that

you’ve got a perfectly good working

camera and you take a picture but when

you try to print that picture out your

printer only spits out half a page the

brain doesn’t recognize the data coming

in from the left hand side of the world

and it assumes

that all of the data coming in from the

right hand side of the world is the

entirety of your vision

in severe cases this can lead to people

literally avoiding one side of the world

now this can be a pretty tricky concept

to grasp but on a day to day basis

somebody with visuospatial neglects may

only eat food off one side of their

plate they may only wash or shave one

side of their face and they’ll tend to

read text from the middle of the page

rather than from the left-hand edge

their brains completely failing to

provide data that the other side of the

world is there in order for them to

engage with it now this can escalate to

being a serious and very dangerous issue

pretty quickly potentially the most

dangerous aspect of esm is the tendency

for patients to overlook obstacles in

what’s referred to as their neglected

side so as a result they can have a lot

of difficulty learning the layout of

spaces and how to move through those

spaces effectively dramatically

increasing the risks of Falls and

associated injuries as if this wasn’t

difficult enough it’s further

complicated by what’s referred to as a

body imaging deficit somebody with a

visual spatial neglect can have a lot of

trouble understanding the physical

dimensions of their own body they’ll

tend to neglect 1/2 so whilst I

understand that I’m this wide and I can

fit through a space this way somebody

with a visual spatial neglect may only

understand one half of their bodies as a

result they’ll often misjudge the kind

of spaces that they can move through or

they will greatly overcompensate for

what they can see as you can imagine

visual neglect patients will often run

into doorways or furniture on their

neglected side and if you couple this

with the common physical aspects of a

brain injury

mobility difficulties issues with

balance you can start to see how

everyday tasks and movements that would

otherwise be quite common and mundane

now start to present a very real

potential danger now I’d like to start

telling you that at this point things

get better but unfortunately it gets

worse an enormous associated difficulty

with visual spatial neglect is that it’s

often accompanied by a condition called

anis Ignazio which makes the patient

unable to recognize that they have an

issue at all so they’ll have a lot of

trouble actively compensating for their

neglect because their brains will be

telling them that nothing is wrong as we

saw it treatment and support for mum I

quickly came to realize that the

treatment methods for visual spatial

neglect were both limited and pretty

time-consuming in their execution the

most common form of treatment is through

what’s called behavioral mitigation

strategies intensive one-on-one therapy

a therapist will go through a number of

activities to try to teach a patient to

disregard their brain telling them that

there’s nothing else to see and to look

over into their neglected side and as

many scenarios as possible

commonly therapists will teach patients

that as they approach a doorway they

need to remember to look over to the

left they’ll teach them that as they

approach a step they need to make sure

that they look down and to the left to

avoid being caught up or tripped and

they’ll teach them that every time they

enter a room they need to visually scan

that space to get in as much visual

information as possible so they can

better understand how to move through

that space effectively now most commonly

this treatment is delivered in a

clinical rehabilitation setting now

clinics set up to be safe the patient

they’ve generally got nice big open

spaces flat carpeted floors there’s a

very little low set furniture and there

are always therapists on hand if

something was to go wrong now

unfortunately back in the real world in

particular in a patient’s home things

typically are not set up like this back

at home

you might have uneven floorboards or

carpet you’ve got a coffee table

you’ve got your couch you might have

pets you may have children or even

grandchildren and there can be a lot of

visual distraction around which can make

trying to apply what a patient has

learned into a in a clinic into their

home a pretty difficult task and if you

couple this with memory and detention

difficulties and the fact that many

patients may not even be aware of their

own deficit you can quickly start to see

a real problem now I can’t stress enough

that the way that therapists deal with

visual spatial neglect now is absolutely

fantastic they’re using the best methods

we know of to treat a really difficult

condition and trying to teach patients

strategies to overcome their neglect and

then trying to get them to retain that

knowledge and apply it outside a clinic

that’s a really really tricky task to

achieve treatment has its limitations

depending on where you live the level of

universal health care available your

personal access to private health

insurance you may only be eligible for a

few months of treatment post brain

injury in some instances you may get

none at all surely there had to be a

better way to deal with this so I asked

myself how could I use my skills as an

industrial designer to in the simplest

manner possible replicate the

actions of a therapist enhance treatment

techniques and do this with an automated

system that could be taken directly from

so I took the most basic principle of

VSM treatment reminding patients via

verbal cues to look into their neglected

side in as many scenarios as possible

and I applied this to a simple wearable

system VSM patients will get a pair of

glasses fitted with a discreet camera

and a bone conduction speaker and the

other aspect of the system is a series

of small infrared tags which are to be

fitted throughout a patient’s home in

locations where their therapists or

carers or their family members think

that they’re most needed whether that’s

on the ends of your coffee table on the

left-hand side of every doorway maybe

it’s just on the inside of the left-hand

side of your pantry when you approach

one of these tags they’ll start to glow

to try to capture your attention and the

camera in the glasses will pick up the

location of the tag and you will be

given clear verbal instructions through

the bone conduction speaker to search

for that tag in your neglected space our

bone conduction is ideal for this

scenario because it transmits sound

directly through the skull it makes the

system a lot more discreet because

nobody else around you can hear the

verbal cues also many patients who have

a visual spatial neglect often have an

auditory neglect which is an inability

to properly process sound on one side of

the world bone conduction helps to

in simple terms all we want to do is to

alert patients to what’s outside their

visual field and get them to look in

that direction in as many scenarios as

possible whether that means knowing

where a piece of furniture is knowing

that you’re too close to one side of a

doorway or maybe it’s just being able to

find something that you would otherwise

miss now the idea is that the system

would be used initially in a

rehabilitation clinic therapists could

use the system for neglect training

activities so immediately

patients are made aware of exactly what

they have to do find these tags in every

required scenario and that exact same

task is translated directly from a

clinic into a patient’s home and this

direct transfer between clinic and home

can help avoid any issues around trying

to apply a learned task to what may now

seem like a bit of an unfamiliar

environment hopefully leading to greater

functional outcomes and a much faster

recovery now the system is designed to

be taken home so that your treatment can

continue I sat down and I worked out

that the cost of fitting out mums entire

house with the infrared tags was still

less than what we were spending for just

one week of therapy now for patients

with a mild neglect the system might

only be used until they’ve built up a

good habit around looking into their

neglected site at which point the system

for patients with a much more severe

neglect the system might be used

constantly as long as they need it as

long as it’s helping because visual

spatial neglect is such a pervasive

condition for some this system might be

the difference between whether they need

a live-in carer for others it could mean

the difference between whether they get

to stay at home or whether they need to

go to a living care facility it’s

designed to streamline the recovery

process in a manner that doesn’t require

you to rearrange your lifestyle brain

injury does enough of that as it is now

this is a treatment for just one aspect

of brain injury recovery it’s not rocket

science

and we haven’t reinvented the wheel I’ve

taken a relatively simple and

cost-effective design solution and have

applied it to a significant problem now

prior to 2012 I had never even heard of

visual spatial neglect if my mum had not

had her stroke I probably never would

have ever heard of it and I would have

never come up with a design solution to

help to treat it let’s not wait for

designers and engineers to have such

personal connections with these problems

to start turning their attention and

their talents toward finding solutions

if you have a problem tell a designer if

you are a designer or an engineer go out

and find a hidden problem you never know

the solution you create might one day

help someone you love [Applause]

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