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ВИЧ – не приговор | Алия Масаурова & Бауыржан Байдуллаев | TEDxYouth@AbaySt


[music]
which of you remembers that in 2006
Shymkent mass infection occurred
hiv infection children please raise
hands but not so many let’s
remember those times in 2006 hospital
cities of Shymkent 149 children were infected
HIV infection when not used
sterile medical instrument
families of these children came real trouble
total lack of support shock tears
rejection mutual reproaches here with what
first faced parents of these
kids
besides, there was talk in society
volume to create
reservations need to move there these
families
need to burn these children around these
families had so much negativity that they became
crumble family
men will not stand the emotional
tensions began to leave these families
many simply ran away nobody believed that
these children will have some future
that they will survive for six months
parents and these babies become real
outcasts of society besides and leadership
the region tried in every way to hide that in
chips occur in the region
only in october 2006 by the president
the country was shown political will
on the full support of these families and
finally came the very long-awaited
help came from all over the world
HIV treatment specialists were
material assistance provided to these families
invaluable contribution to this decision this
problems and help these families and children
rendered unisef was rebuilt
a and a rehabilitation center is open
analogue which is not present
day but in society
because it still remains like a plague
but now it’s twenty-first century these
families and these children
open they do not recognize the fact that
they are hiv-infected these children by
Today we do not see for the society
everyone lives in great fear and not
burdened by the fear of being rejected
society all but one
i am one of these one hundred and forty nine children i
also HIV-infected today
day i am the only teenager in castagna
who lives with open cleanliness himself
today about my favors about my
status know all my friends
classmates
parents of 1 plastics and from neighbors yes
our family lives openly with my husband
Immediately decided that we are from anyone
we will not hide we did nothing
bad yes we were not easy we passed
through many difficulties we sometimes
had to change people’s minds we
had to be active because
we had the task of social backwater
our child in 2010 when I went
in 0 an eye, parents told me that
teachers in school that teachers in school
strongly worried about the fact that
lesson will attend
attend a hiv-infected child
they could be understood because they did not
had experience working with such children in
the beginning of the school year the teachers tried
to protect me in every way, for example, my
the class teacher asked me
do not go out for a break and so I
I asked for half a year but I did not tell it
to parents
like home it’s okay once
physical education teacher and asked the class
who is canoe life and when i came out
building
then he told me that I better let him
benches and from these words it was not insulting
because all my friends were running and I
sat on a bench we are like parents
understood that protecting the child we do not
help him and then we took
the decision that you need to prepare the school
in which our our child studied and we
started to spend
information trainings and enhance
literacy educators question from hiv and
aids but still for 9 years of study with me
once there was a nasty story that
in gym class I quarreled with
to his classmates and first he started
call me and then at the end called me
these words were not very funny
offensively and I was not ready to hear that
from beselia I just ran into the locker room
and wept when we heard about it
the incident we realized that we had something
we miss because until this case all ours
activity was directed
directly informing educators
and then we realized that the time had come
conduct training directly with
classmates of our son together with
school management we developed and
conducted trainings and the subject of one of the training in
we had the rights and duties of a child then
there is yes children have rights but for sure
children with children have the same rights
or other diseases also children should
were to understand that besides rights they have and
obligations they must bear
responsibility for their actions
after this training, my walked up to me
and asked me for forgiveness he confessed
he said he wanted so badly
the ball that decided to hurt me he admitted about
that it happened to him by chance
11 years I take daily
drugs that control
number of viruses in my blood once
I wait for half a year to analyze us for immunity
among 4 and viral load my
immunity is 900 cells and you
knew that the immunity of a healthy person
is 1200 cells it means
my those healthy teenager my
viral load is 50 less than 50
copies
This means that I am only carriers.
virus and while i’m drinking drugs i can’t
pass on
a cure for HIV as a child was a
syrups and yet they were very bitter we
not still remember the bitter taste
but then there were tablets there were many
that’s eight pieces twice a day.
I have been drinking a new scheme for more than a year now
which consists of two tablets one
once a day i used to drink pills and
parents explained it to me what is it
the treatment is lifelong but sometimes mine
friends ask me never tired i
take
I try not to think about it
because I just understand my own there
pills my friends and I created a group
self-help which is visited by the guys with
status in this group we are talking about hiv
share with your problems and know
something new
it was there that we learned how to hiv virus from
attacking immunity cells and they k it in
them and it is important for us so far to communicate between
themselves as society is not yet ready us
take this year I visited camp
who organized not sat down I communicated with
many of them and all of them and they all live
with a big load which is called
I’m not telling anyone that you have HIV
last year we were also a son
participants of the summer rally which
held in Russia topic
training was sigma and discrimination
the guys asked to write why they
afraid to talk openly about what they have
hich each sticker
started with the words i’m afraid i noticed that
Volzhan writes nothing then I asked
he why you do not write he answered
mom i don’t know what to write i don’t
I’m afraid then I realized that all these 12 years
we did everything right
and now I want to pass on my experience and
help the same parents to overcome
barriers I want to help those guys too
who live with hiv infection i want to be
an example for living the same way
open and not afraid
[applause]
[music]
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