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The Psychology of Beating an Incurable Illness | Bob Cafaro | TEDxCharlottesville


in December of 1998 after just having

turned 40 years old I started

experiencing a strange numbness in my

right leg and I didn’t think much of it

until about a week later I was at a

rehearsal and I stepped off the riser

onto the stage of my right leg collapsed

from under me at this point I saw two

doctors and they both thought it’s

probably just a pinched nerve nothing to

worry about

good two months later I started to lose

peripheral vision in my left eye which

was now a worrisome situation and I saw

my very first neurologist and he

examined me and said you have MS and I

didn’t want to hear this my only

knowledge of multiple sclerosis was the

Great British cellist Jacqueline Duprey

who was forced to stop playing at the

age of 26 and later died from

complications of the disease at 42 so

you could imagine a professional cellist

being told I have this debilitating

disease denial was a river in Egypt I

was not willing to accept this and then

four months later I started losing

peripheral vision in my right eye which

was really scary because my left eye had

never recovered completely and about one

week after that I came down with what I

thought was a stomach bug but it didn’t

go away it turned out to be a prolonged

period of something like motion sickness

I wound up vomiting couldn’t keep food

or water down for a week and I wound up

in the hospital for severe dehydration I

was released from the hospital four days

later and I was unable to move my hands

I could no longer

play the cello I could hardly walk I was

incontinent my entire body felt like I

was receiving electrical current I was

hearing helicopters all the time and I

saw my neuro-ophthalmologist whom I had

been seeing for the previous six months

and he gave me a basic vision test and I

was unable to see even the largest

letters on the chart and he proceeded

then with a visual field test where

you’re given a clicker and you click

every time you see a light flesh in the

periphery and I sat there completely

frozen not one click I couldn’t see a

thing

he changed through the other eye i sat

there once again no clicking he stopped

the test and he said the words I’ll

never forget I’ll write you a note for

permanent disability whoo this was just

insane I don’t know what happened at

this point but something went through me

and I told him you can take that note

because I’m going back to work in six

weeks when the orchestra season started

I said I’m going back to work in six

weeks when the orchestra season started

and he said how are you gonna do that he

didn’t believe it was possible but I did

so what do I do I have this

I’m completely taken out my central

nervous system is up in smoke I can’t do

anything there’s a story of a

tractor-trailer that gets stuck under an

overpass and structural engineers are

brought to the scene how do they raise

the overpass dig grooves into the

pavement under the wheels a six year old

boy comes along on his bicycle and says

hey mister why don’t you just let the

air out of the tires so we were all six

years old once but we lose that over

time and with education so I said to

that six-year-old boy inside me I need

your help

you’ve got to show me how to let the air

out of the tires of this disease so

together we started looking for obvious

things that were overlooked by the

experts and

the first thing I found was the water

cure I started drinking half my body

weight in ounces of water a day I

noticed my first signs of improvement I

looked at other things I looked at MS

rates around the world and noticed that

your very poorest nations have rates of

MS that are about 1/3 of your wealthy

affluent industrialized nations I looked

at Japan having been there with its

environmental and overcrowding issues

very low rates of MS

I saw the Okinawa centenarian study over

900 people that were looked at over the

age of 100 and in perfect health so I

began to believe that our wealthy lavish

lifestyle has some link with higher

rates of multiple sclerosis I also

looked at something called the placebo

effect and this is where the

six-year-old boy helped if you look at

clinical trials where you get people who

inexplicably improve in the placebo

group it’s written off as an anomaly by

the experts the six-year-old boy said

something is happening here so I started

learning the placebo effect by

meditating to 30-minute sessions a day

that the MS was going into remission and

leaving my body completely one of the

other things I used experiences all

through my life and I was once on a

backpacking trip not far from here in

shannon Doan National Park and after

three days in the woods I came out at a

visitor center and I saw a big sign with

a beautiful picture of a deer and it

said do not feed the deer when you feed

a deer human foods such as chips and

candy you reduce its lifespan by 30

percent so I’m thinking I’m gonna be as

healthy as this deer so I basically

adopted the deers diet a deer drinks

water eats vegetation probably some

insects I passed on that one but

another thing I started to do is I

looked at people who accomplished the

impossible how do they do this your most

basic example is in 1954 the first

person to run a mile in under four

minutes was Roger Bannister prior to

that people said it’s impossible human

body can never do it he does it it’s now

an achievable goal the baseball pitcher

Nolan Ryan who threw his seventh

no-hitter at the age of 44 and in that

game throwing the ball 96 miles per hour

he stayed off the aging process of the

human body for 25 years so I’ve adopted

his lifestyle

every morning I begin with yoga

stretching weight lifting you name it

cycling I live a very disciplined

lifestyle in 2013 I had the privilege of

meeting someone who accomplished the

impossible and that was Nando parado who

survived the famous plane crash in 1972

in the Andes Mountains and when the

plane crashed in the winter high up in

the mountains nanda was thrown from row

9 into the bulkhead his skull was

fractured in four places he was given up

for dead and placed in the cold with the

bodies three days later he awoke from a

coma and 72 days after the crash Nando

showed up in the foothills and got help

this man had gone 37 and a half miles

through one of the most difficult

mountain ranges in the world in the

winter he had never seen snow

he had no survival training no gloves no

boots no equipment and no food his only

source of food was the people who had

perished in the crash mountain climbing

teams that reconstructed his route said

what this man did was not possible so I

met him and I said to him I always

wanted to meet you and thank you because

you were one of my guides when I was

finished I’m not supposed to be here and

he said I’m not supposed to be here

either and when this giant gave me a hug

something went through me I felt like

for the first time that I had cured

myself of this incurable disease and I

went back to my neurologist whom I

Sene for 11 years and he did a complete

series of MRIs again on my brain and

spinal cord in 1999 my brain had over 50

active lesions in my spinal cord had one

that was three and a half centimeters in

length and I worked so hard at my

recovery and true to my word I went back

to work in six weeks when the orchestra

season started wasn’t easy but I kept

going never missed work I missed five

weeks of work that year when I was

hospitalized so I had in 2013 I had a

complete series of MRIs then when my

neurologist looked at the results he

said to me you did the impossible

because there were no more lesions and

no traces of the disease anymore

whatsoever so I was so taken out in 1999

but I worked hard and everything came

back I got the use of my legs back I got

the use of my eyesight back I now make

it to the bathroom when I need to go I I

don’t hear helicopters anymore and I

don’t feel like I’m receiving electrical

current anymore but the most important

thing I’ve gotten the use of my hands

back

[Music] [Applause]

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