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The #hellomynameis Story | Chris Pointon | TEDxQMU


hello my name is Chris pointin I’m the

co-founder of the hashtag hello my name

is campaign and I want to take you on a

journey a personal journey an

educational journey but also journey on

how through adversity comes legacy July

23rd 2005 July 23rd in general it’s a

poignant day in my mind and in my memory

2005 it was the day that I married my

soul mate she just finished studying at

Edinburgh University six years doing

doctrine it was the happiest and the

best day of my life I will come back and

refer to July 23rd along the way as we

go through today’s talk and as you can

see from there you know the weather was

perfect Kate look beautiful as she

always did and myself you know looking

ok so we fast forward now quite a number

of years to 2011 and you know kits

working away up as a junior doctor

working long hours and I’m working my

way of the management ladder as the

house in Leeds and we thought it was a

well-deserved holiday in California

where fortunately we’ve got family and

friends that live over there and this

picture was taken on a vineyard in

Sonoma Valley in California experiencing

wine tasting and having a really nice

holiday except for the fact that Kate

wasn’t feeling that great but we just

put that down to tiredness

we put it down to the Travel Inn the

jetlag etc 24 hours after this picture

was taken

I found KITT riding around on the bed in

my relatives house and me as a non medic

in the relationship made the decision

that we needed to go to hospital we

needed to tick it – er in the States and

looking about now if we hadn’t have done

that because of the ramifications of

Kitts renal failure another 24 hours

Kate would have died there and then in

so we pursued we returned to you care to

pursue further treatment within the NHS

and it was clear from the start that

this situation wasn’t great and through

all the tests that we went through in

lead every AM scenario was always the

worst case scenario and at that point

kit was given six to twelve to live with

her Desna plastics small round fell

tumor diagnosis the picture on the left

there is obviously care and looking as

beautiful as ever and in a hospital ward

in lead being told by her consultant at

that time I don’t think he won’t be able

to work again kit

you know you prognosis isn’t great care

is very determined and kids very

resilient and she said to the console

and I will work again in some capacity

New Year’s Eve 2011 we made a decision

to stop chemotherapy at that point

because the burden and the balance

between good living and being in

hospital was just out weighing each

other three weeks later Kate was back on

the wards working three days a week as a

doctor doing the job that she loved to

do looking after older people the next

18 months or Sur saw Kate have

relatively good health and not having to

have much intervention she wrote a book

and when then she went on to write a

second book but the first book was

talking about her experiences in

hospital other doctor under patient and

throughout that time she was getting

quite a big following on social media

and a lot of people were asking her to

go and talk and give inspirational

speeches at various events across the UK

and kick came up with her own core

values that you know still resonate now

in health care but also across business

so kids for things were around

communication communication is key in

any relationship in health care as a

patient and as a doctor or healthcare

professional she was passionate about

the little things birth in her work and

herself as a patient

so making a patient a cup of tea and

kneeling down the bed next to patient so

your eye level Robin

you know carrying over them the third

value of kiss was being at the center of

all decisions Kate didn’t want decisions

to be made about her without her input

but she appreciated that because she is

in you know she’s from a medicine

background she can understand it more

than most others so for her it had to be

bespoke care tailored towards kit and in

the final value of kits was around seen

here as a patient but also seen here as

a person so kit is a keen Baker you know

she’s an auntie she’s a great chef she

plays in a band she’s so much more than

just bed number seven or that girl with

DSR CT so 18 months down the line like I

said she start to feel unwell again the

tombs of start to grow again inside we

had to go back in for another hospital

admission further rounds of chemotherapy

and on the back of the chemotherapy it

made Kate really unwell and she had a

period of neutropenic sepsis which when

we were back in hospital and in a side

room being looked after by healthcare

staff and what’s significant about this

particular admission was that every

single healthcare member didn’t

introduce himself care was having blood

taken by a nurse who didn’t even check

Kate’s day at birth she was talking to

another nurse up on another patient

whilst taking blood from Kate and this

was start to really agitate Kate and in

a way that I’m not really seen before

from her and I think it’s because of the

passion that she exudes around you know

helping other people we then met Brian

and Brown was a porter and he had a name

he had um he took care when taking Kate

down to the theatre

and then that evening Kate and I were

talking about this in the side room

again and kit was um she was moaning you

know there’s no work no the way of

saying it she was moaning about it and I

said look here as in business if you’ve

got something that’s not right either

stop moaning about it or do something

about it and we decided to do something

about it so we this

just at length and the outcome of that

was a social media campaign called

hashtag hello my name is the first tweet

that was sent in August 2013 now you

know kit sent this tweet out we thought

it’d be a couple of weeks it would die

down we won’t really get much response

on it

the response was unbelievable and that’s

sad in a way because something so simple

shouldn’t have been needed in the NHS or

in global healthcare but it was and the

stories that were coming back from

people across the world men that it’s

not just an isolated incident

it is something that’s across everywhere

and care at that point always said she

did not want to remembered other person

who died young of cancer that young

doctor who left before her time she

wanted to make a difference in

healthcare she wanted to make a change

that would last a lifetime and for

generations to come and she always took

quite a lot of inspiration from this

court so we set off on a journey with

hello my name is Kate’s brother he’s a

IT geek so he built a website which is

still in operation today and we have the

hashtag hello my name is that is now a

lager that one of our friends designed

for us

Kier was asked to write for various

article for various magazines and

publications and which those copies of

on here and we were getting a lot of

pictures through from various hospital

trusts in the NHS but also organisations

outside the NHS wanting to get on board

how can I help on spreading the message

of hello my name is Lonnie odds are

being done there was selfie campaigns

there was kick sales going on raising

the awareness but also raising money for

various charities with the main charge

that Kate and I were doing work with we

got to air pool 2014 and I think this is

the murmuring kit realized that if she

died at that point she would have made a

difference to the world in health care

and the reason for that is that kit was

asked to go speak quite a large

conference over in Paris and she met one

of her health care here

Don Burwick and managed to get him to

display the hell on my name is badge and

in the bottom picture on that slide

there is the main stage at this

particular forum with hello my name has

been used by various people so kitten

you at that point Wow I’ve made a

difference and you know I can now rest

in peace but obviously that was 2014 you

know Kate still had more ambitions my

bucket list activities to tick off and

that was what helped her kept her going

over the next few years her own hospital

where once she was having treatment but

secondly she worked out for a time as

well

pledged their support to the campaign

and if the colleagues who work there

would pledge and to treat people as they

want to be treated themselves they were

given a badge which that all over the

hospitals down so far the badges of race

for the charity around 25,000 pounds

because the badge company done it some

of those profits to our actual charity

as well so we’ve got there Julianne who

is the chief exec at least teaching

hospitals every single week he talks

around Kate’s campaign and he talks

about Kate Granger we were with them

being asked to talk of the forum’s so

NHS expert in 2014 I’m continuing on on

an annual basis we’ve now got the kicker

injured compassionate care awards which

are named after Kate because of all the

hard work that she did to change health

care for the better and to drive

compassionate care within society in

2014 Kate didn’t think she’d be there

and to present the award so she actually

recorded a video saying look I’ve passed

away and you know these were wasn’t

really proud however but then the next

year in the next year she’s still been

there to present those awards and last

year was the first year where she wasn’t

there although she did do a video to

play at the actual awards as well but I

was there to present the awards on on

our behalf so if you’ve got something

that is cost a little money takes little

time improves patient care and looks

good in the media politicians want to

get involved

so care now fortunate enough to go down

to meet the then Prime Minister David

Cameron and talk about the campaign with

him and he plays to support to the

campaign across the NHS we were also

invited of a couple years ago to to meet

Nicola Sturgeon and she also played her

sport and also pledged the money to the

Scottish NHS and to support the campaign

Kate had a a suite named after a

hospital down in Watford which Gina

Jeremy hunts down there and having his

photograph taken next to Kate at the

Grange of sweet and he was also in the

response to the Frances inquiry around

mid staffs so me being on health decided

what can I do to really promote this

campaign across social media so I got

behind the celebrity side of it so

people are in the spotlight that can

really drive the campaign across social

media to make sure that it’s something

that keeps going and is well publicised

so you know michelle rhee jr. which is

one of kids favorite chefs and a good

friend of ours now Richard Branson’s

support the campaign you know you’ve got

Kylie Minogue on there we then went on

to think about how can we further do

make changes so in 2015

Kate was back on the chemotherapy drug

and on the 2nd of February we had a

listening to action they’re launching

the event again so Kate was doing a load

of radio work first thing in the morning

she then went into hospital got hooked

up to the drugs and start taking

chemotherapy onboard she then had to

break off from that going to another

nurses officers to do another radio

interview on Radio 2 to talk about you

know hello my name is and it’s it was

such an amazing day a proud day but also

a reflective day as well given that Kier

was actually having chemotherapy for her

terminal cancer we took it on tour so we

took a week out of our busy schedules we

visited 16 trusts across the NHS in a 1

week hit and we’ve got such an amazing

support across the UK you know visiting

various hospitals talking about the

campaign and caregiving amazing speeches

it’s also gone global now sir

I regularly get information photographs

from support across the globe sir in

Australia New Zealand America across

Europe in places you won’t actually

expect so in South Africa and Sierra

Leone with the Ebola they had it across

there and later on this year I’m

actually gonna be taking it further on

tour and actually visit in Australia and

giving conferences over there to hear it

firsthand so today it the hashtag hello

my name is that can be related to health

has held over 1.6 billion Twitter

impressions we know that it’s widely

used everyday across healthcare because

of the amount of photographs and

mentions that we get on social media it

is the stab of therapeutic relationship

and we do have global ambassadors who

are actively campaigning on our behalf

and what you’ve got to remember is in

the NHS a million people are treated

every 36 hours if we can touch 10% of

that million people 100,000 people

everything it’s how we’ll have had a

better experience on compassionate care

because of hello my name is Sir as I

start to wrap up going back to the July

23rd and July 2016 set a lot of

challenges along the way

now two of the challenges as we came

into July 2016 were she wanted to hit

the quarter million pound mark for

charity and she wanted the new prime

minister Therese Amir to pledge her

support to Hill on my name it so I had

probably about five or six days to turn

this around the letter bearer from down

the street is a handwritten letter from

Theresa May pledging her support to the

campaign and the tweet on the right is

kit instant Gemma’s Hospice in Leeds in

her final few days after we just hit the

core of the empowerment for charity so

it shows that you know with a little bit

of support and through adversity can

create that legacy so back to July 23rd

happiest day of my life in 2005 2016 the

saddest day of my life it was the day

when we said goodbye to kit it was the

day when my life changed forever

and a lot of other people’s life’s

changed forever but it was also in some

ways a relief that cared actually she

was now pain free she had left this

world but she knew she’d made a

difference she knew that she created

that legacy and it was a hard day and as

any day would be and when you say

goodbye to soul mate but sixteen years

knowing the person that did is an

amazing journey that with care mom and I

suppose the day after that when it was

announced on social media because

obviously we wanted to make sure that

friends family were all aware that care

had passed away the support and grief

that came through from unexpected

sources was amazing so you know the

various amount tweet from there from

people that you know have met care or

had support the campaign in recent years

you know Nicola Sturgeon sent a really

nice note Richard Branson’s on there you

know other people James Martin etc who

really really got what Kate meant you

know and really got the campaign so

what’s next

as I mentioned a global tour is coming

up I’m in the middle of writing a book

to explain what it’s like from the other

side of the other side and there’s going

to be a play written will having a

international hello my name is day on

the 23rd of July every year going

forward we’ve also got other things in

the pipeline for what can we do in terms

of Kate Grainger Awards I’ve already

this year been to six different award

events and represented the carry and

compassionate care Awards at those

events and and then my final thought

it’s four words you know hello my name

is this four words it can make a huge

difference and we need to make sure that

Webber walk of life will really be it

health care it business be anything else

we need to make sure that legacies

continued and there’s one of Kate’s

courts they’re saying that all doctors

wanting to leave their mark on society

and Kate certainly did sir yes through

adversity does come legacy thank you

very much [Applause]

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