[Music]
tonight I’ll tell you a
history
I will tell you our story
this story that transported us to
the other end of the world that made us
discover unknown lands but
of incredible beauty
there 7 years we have made great
trip it was a real earthquake
earth as if we were getting up from a
deep coma then what if he
past
well we discovered a new
language
at the age of 1 year our little girl
marie was systematically making the big
gap
when she pass from the sitting position
to lengthen so easily that I
wanted to try
finally, I’ll give you the details
was a fiasco
I almost touched the age of 2
that same little marie was sitting
in his high chair to eat his
to taste she was moaning and seemed to be talking
all alone but in fact not at all
was talking to a fly I stopped
immediately my activities of the moment
totally dumbfounded by this scene
it was surreal
I had you husband had her tiny
index pointed to the fly
she spoke to him with a very
authoritarian telling him his nervousness
well yes the fly arises is
successively on his arm his nose his
chocolate his chocolate his nose his arm
marie had beautiful hunting and fly
daring a real fly of the tick
start over again then I do not
could not get into these discussions
because my daughter spoke the language
fly then you probably think that
I’m one of those mothers who have
no objectivity on their children
but in this case not at all
that this famous fly to the pier after
some zigzag flights
to skull of course ended up leaving
the piece marie imperturbable has taken over
his snack and me well I had the
mouth so open that I almost
swallow this fly around the age of 4
years old this time husband was in the process of
play in a room is the most a
noise a little worried I’ll see if
she was preparing a silly husband was
motionless behind the window of his
bedroom
intrigued I approach and I see a
bird in the garden a little quickly
I turn around telling me this is
so that but before ironing the
door I changed my mind
I do it again and I decide to
put at the same level as Marie I
decides to look with the eyes of
marie lying flat on the ground belly I
decides to rediscover the magic of a
bird that is washing all these little ones
precise gestures to wash her
way to wet your head
the pasta still on the edge is alive
tingling beak to revive his
feathers and put them back in place
and then his way all of a sudden to get
throw everything into the puddle
flailing like a little crazy when I
look with the eyes of Marie I
feel I feel it’s a drop of water
that wet my feathers I become
little bird that delights me with these
a few minutes of deep happiness I
savor the coolness of the water I hear
the rippling water poured this
tranquility
I savor all that puts everything is in
suspense
no I become stupid but not good at
otherwise I reconnect I’m relearning
I reborn thank you marry then more I
were watching my daughter live anymore I was doing
the finding that I was well limited by
report to her first I was not doing
the big gap 50 times a day
secondly unfortunately for me I
did not speak fly language and
thirdly I was not amazed
to watch a bird in the garden
then the verdict falls naturally if
I compare myself to my daughter I am
disabled I come back on what I you
said at the beginning there 7 years we
decide with my husband nicolas and our
six children to go on a crazy journey
some dissuade us assuring us
painful but sure tomorrow
our aspirations
we were leaving on these unknown paths
decided to leave our comfort to go out
of our land not by voluntarism
but out of love
yes there 7 years we making love
to adopt this little marie of which I
have just spoken to you
married and carriers of trisomy 21
and it’s even funny life is full
of humor because in the eyes of many
it’s great family adventure was
perceived as the end of our couple’s
our tranquility of our family is
far from dying slowly
we realized little by little
we were living better
so this chromosome in addition to marie
luck or bad luck
well it all depends on how one
see things
it all depends on how one gets
positions in general
it’s always a plus to have something
thing in addition to the others especially in
our society where we always run after
most of the most of the most for
to have more and then you will give me
a little bit more by the way some
talk about extra chromosomes and
else of the chromosome comes in to
language problems again and
well everything depends on the repository in
which one is then me tonight I
invite you
I invite you to enter our
new reading of the difference I
invites you to decipher the messages at
beyond appearances and understand that
the supernumerary chromosome of marie and
as a circumflex accent on his
genome because in the language
French circumflex accent leaves
puzzled but he makes the word more
important it makes it even more beautiful
wearing his hat on lem write it
more than the others because he is
funny he’s even prettier as a
mole on a smooth skin and
well for us the chromosome
supernumerary and that grain that
makes this little hat so beautiful
sharp that gives him his eyes two
Chinese and well trisomy
it’s like this circumflex accent at
at first it disturbs
it puzzles that bother because
obviously we bang on this
difference we hurt ourselves we only see
that we are even hurt by our losses of
landmarks
and then, little by little, we listen
we learn we think about it
priori we explode our standards and we
love or love and I will even go
further
we do not want to do without his children
because they propel us out of us
even he frees us from
n they take us out of our cave as
said plato because that’s because this
who is monstrous seller representation
distorted about reality
of disability then and if we lived at
place to think about life and if we took
care of each other instead of giving oneself
apology
and if we risk ourselves at a vacuum with aridity
to anguish to try to redo
laugh our deserts he got all
simply we risked dice but then a
loving husband many thought we
let’s sign life the end of our family
well it’s just the opposite
happened
it was a rebirth the beginning of a
other life married we had all stung
of 7 and not this desire to travel and
to meet other trips
so well we recovered
en route in December 2007 even our
little girl fell into our nine
heart a little marie madder without
chromosomes in addition to marigard years she
is there a wheelchair more marica
years she can not be powered by
mouth like us then she has a
small valve directly connected in
the stomach a bellybutton in addition to actually
as much husband allowed us to discover
areas of understanding a veil
stood up
as old marigard years allows us
to deepen this initiative
so to explain to you my reverence
for example she has the faculty of relay
but the word is weak because when
she laughs we cry because nothing is more
beautiful is as sweet as the road from to
caramel
our childhood grandma colette marigard
years when she laughs our heart is recovering
to beat as if we were in the room
shocks with the defibrillator on the
chest
she laughs for example when they are the
caress his cheek and him
lift my hair and I’m fine
skin became so rich with the
time that I do not feel it more often
marigard years she shows her joy her joy
immense
when she feels the millions of grains
hot sand from the beach sunk between
his toes well me like a
dinosaur at the beam august years like
a bulldozer that does not connect me anymore
my feelings I no longer feel this
immense joy of market on six sand
hot marie madder is extremely
fragile his life hangs by a thread
she has a lot of trouble breathing that
swallowing is virtually nonexistent
because she has a lot of crises
of epilepsy his little brain does not allow
not to master all these functions
vital
then with us it is certain but morning
no longer have the same flavor
when we hear the breath of Marie
madness requires hallway
what a joy it is each time a
victory of life over death it’s up to
each time one more day given to
farms and what a gift then thanks to
the immense fragility of marie madder and
well by mirror effect we understand that
our life is just a thread away
we finally perceive our finitude and we
comprises
it’s time to love now before
it’s too late
it’s time to love today because
we do not know if tomorrow will exist
so if you followed well
so you understood that with nicolas
we had six natural children when
we had the huge chance to adopt
our two little husbands then
naturally you will think that we
passed by our six children
to take care of our two little ones
fragile girls well that’s all the
contrary again that has
past they allowed us to
wake up from our sleep
was time because as it was said
normal and ben he was perfectly
cut to fit in the drawers
designed for them everything should happen
as in the books to yop each his
case it’s tidy anything that exceeds
it’s reassuring
result we were going through
next to their individual wealth because
all are unique
all are different all have things
in addition and all have disabilities
so we understood that it was time to
love them for what they are and not
for what it should be
I understand that life does not make sense
finally that if we totally like that
if we take in our arms the totality
without leaving aside what does not
please do not like it because that ‘s it
start again after the fall
that’s what nourishes our soul and who
forge our true language because
the soul does not reflect it sweats and
then life she does not think herself she is
lives
[Applause]
[Music]
tonight I’ll tell you a
history
I will tell you our story
this story that transported us to
the other end of the world that made us
discover unknown lands but
of incredible beauty
there 7 years we have made great
trip it was a real earthquake
earth as if we were getting up from a
deep coma then what if he
past
well we discovered a new
language
at the age of 1 year our little girl
marie was systematically making the big
gap
when she pass from the sitting position
to lengthen so easily that I
wanted to try
finally, I’ll give you the details
was a fiasco
I almost touched the age of 2
that same little marie was sitting
in his high chair to eat his
to taste she was moaning and seemed to be talking
all alone but in fact not at all
was talking to a fly I stopped
immediately my activities of the moment
totally dumbfounded by this scene
it was surreal
I had you husband had her tiny
index pointed to the fly
she spoke to him with a very
authoritarian telling him his nervousness
well yes the fly arises is
successively on his arm his nose his
chocolate his chocolate his nose his arm
marie had beautiful hunting and fly
daring a real fly of the tick
start over again then I do not
could not get into these discussions
because my daughter spoke the language
fly then you probably think that
I’m one of those mothers who have
no objectivity on their children
but in this case not at all
that this famous fly to the pier after
some zigzag flights
to skull of course ended up leaving
the piece marie imperturbable has taken over
his snack and me well I had the
mouth so open that I almost
swallow this fly around the age of 4
years old this time husband was in the process of
play in a room is the most a
noise a little worried I’ll see if
she was preparing a silly husband was
motionless behind the window of his
bedroom
intrigued I approach and I see a
bird in the garden a little quickly
I turn around telling me this is
so that but before ironing the
door I changed my mind
I do it again and I decide to
put at the same level as Marie I
decides to look with the eyes of
marie lying flat on the ground belly I
decides to rediscover the magic of a
bird that is washing all these little ones
precise gestures to wash her
way to wet your head
the pasta still on the edge is alive
tingling beak to revive his
feathers and put them back in place
and then his way all of a sudden to get
throw everything into the puddle
flailing like a little crazy when I
look with the eyes of Marie I
feel I feel it’s a drop of water
that wet my feathers I become
little bird that delights me with these
a few minutes of deep happiness I
savor the coolness of the water I hear
the rippling water poured this
tranquility
I savor all that puts everything is in
suspense
no I become stupid but not good at
otherwise I reconnect I’m relearning
I reborn thank you marry then more I
were watching my daughter live anymore I was doing
the finding that I was well limited by
report to her first I was not doing
the big gap 50 times a day
secondly unfortunately for me I
did not speak fly language and
thirdly I was not amazed
to watch a bird in the garden
then the verdict falls naturally if
I compare myself to my daughter I am
disabled I come back on what I you
said at the beginning there 7 years we
decide with my husband nicolas and our
six children to go on a crazy journey
some dissuade us assuring us
painful but sure tomorrow
our aspirations
we were leaving on these unknown paths
decided to leave our comfort to go out
of our land not by voluntarism
but out of love
yes there 7 years we making love
to adopt this little marie of which I
have just spoken to you
married and carriers of trisomy 21
and it’s even funny life is full
of humor because in the eyes of many
it’s great family adventure was
perceived as the end of our couple’s
our tranquility of our family is
far from dying slowly
we realized little by little
we were living better
so this chromosome in addition to marie
luck or bad luck
well it all depends on how one
see things
it all depends on how one gets
positions in general
it’s always a plus to have something
thing in addition to the others especially in
our society where we always run after
most of the most of the most for
to have more and then you will give me
a little bit more by the way some
talk about extra chromosomes and
else of the chromosome comes in to
language problems again and
well everything depends on the repository in
which one is then me tonight I
invite you
I invite you to enter our
new reading of the difference I
invites you to decipher the messages at
beyond appearances and understand that
the supernumerary chromosome of marie and
as a circumflex accent on his
genome because in the language
French circumflex accent leaves
puzzled but he makes the word more
important it makes it even more beautiful
wearing his hat on lem write it
more than the others because he is
funny he’s even prettier as a
mole on a smooth skin and
well for us the chromosome
supernumerary and that grain that
makes this little hat so beautiful
sharp that gives him his eyes two
Chinese and well trisomy
it’s like this circumflex accent at
at first it disturbs
it puzzles that bother because
obviously we bang on this
difference we hurt ourselves we only see
that we are even hurt by our losses of
landmarks
and then, little by little, we listen
we learn we think about it
priori we explode our standards and we
love or love and I will even go
further
we do not want to do without his children
because they propel us out of us
even he frees us from
n they take us out of our cave as
said plato because that’s because this
who is monstrous seller representation
distorted about reality
of disability then and if we lived at
place to think about life and if we took
care of each other instead of giving oneself
apology
and if we risk ourselves at a vacuum with aridity
to anguish to try to redo
laugh our deserts he got all
simply we risked dice but then a
loving husband many thought we
let’s sign life the end of our family
well it’s just the opposite
happened
it was a rebirth the beginning of a
other life married we had all stung
of 7 and not this desire to travel and
to meet other trips
so well we recovered
en route in December 2007 even our
little girl fell into our nine
heart a little marie madder without
chromosomes in addition to marigard years she
is there a wheelchair more marica
years she can not be powered by
mouth like us then she has a
small valve directly connected in
the stomach a bellybutton in addition to actually
as much husband allowed us to discover
areas of understanding a veil
stood up
as old marigard years allows us
to deepen this initiative
so to explain to you my reverence
for example she has the faculty of relay
but the word is weak because when
she laughs we cry because nothing is more
beautiful is as sweet as the road from to
caramel
our childhood grandma colette marigard
years when she laughs our heart is recovering
to beat as if we were in the room
shocks with the defibrillator on the
chest
she laughs for example when they are the
caress his cheek and him
lift my hair and I’m fine
skin became so rich with the
time that I do not feel it more often
marigard years she shows her joy her joy
immense
when she feels the millions of grains
hot sand from the beach sunk between
his toes well me like a
dinosaur at the beam august years like
a bulldozer that does not connect me anymore
my feelings I no longer feel this
immense joy of market on six sand
hot marie madder is extremely
fragile his life hangs by a thread
she has a lot of trouble breathing that
swallowing is virtually nonexistent
because she has a lot of crises
of epilepsy his little brain does not allow
not to master all these functions
vital
then with us it is certain but morning
no longer have the same flavor
when we hear the breath of Marie
madness requires hallway
what a joy it is each time a
victory of life over death it’s up to
each time one more day given to
farms and what a gift then thanks to
the immense fragility of marie madder and
well by mirror effect we understand that
our life is just a thread away
we finally perceive our finitude and we
comprises
it’s time to love now before
it’s too late
it’s time to love today because
we do not know if tomorrow will exist
so if you followed well
so you understood that with nicolas
we had six natural children when
we had the huge chance to adopt
our two little husbands then
naturally you will think that we
passed by our six children
to take care of our two little ones
fragile girls well that’s all the
contrary again that has
past they allowed us to
wake up from our sleep
was time because as it was said
normal and ben he was perfectly
cut to fit in the drawers
designed for them everything should happen
as in the books to yop each his
case it’s tidy anything that exceeds
it’s reassuring
result we were going through
next to their individual wealth because
all are unique
all are different all have things
in addition and all have disabilities
so we understood that it was time to
love them for what they are and not
for what it should be
I understand that life does not make sense
finally that if we totally like that
if we take in our arms the totality
without leaving aside what does not
please do not like it because that ‘s it
start again after the fall
that’s what nourishes our soul and who
forge our true language because
the soul does not reflect it sweats and
then life she does not think herself she is
lives
[Applause]
[Music]
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