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Neurodiversity – the key that unlocked my world | Elisabeth Wiklander | TEDxGöteborg


[Music]

my name is Elizabeth Lander and I I am

autistic what do you think about when

you hear the word autistic how do you

would you say that it is a lifelong

disorder an impairment a disability this

is indeed the way medical language

describes it but autism is so much more

than that no diagnostic manual can truly

explain the multi-faceted experience of

autism it is a neurological difference

with a fast spectrum of representation

within its population it can come with

remarkable gifts and skills as well as

devastating traits but autism doesn’t

necessarily equal disability and

thankfully today we have a word that

challenges this negative terminology

neuro diversity neuro diversity

describes how diverse we are as human

beings from a neurological perspective

it suggests that the many variations of

human brains like autistic ones should

be accepted as a natural and valuable

part of humanity’s genetic legacy DNA

shows us that autism is primarily a

genetic condition something that has

been passed down through generations and

is still widely shared in the general

population these genes can carry some

things so positive in spite of the

difference they caused that they have

persisted throughout our evolution and

still flourish today

some of our important inventions pieces

of art and music and discoveries in

scientific fields that have moved our

world for words come from artistic minds

with today is exciting new technologies

in neuroscience we have seen that

autistic brains differ from the norm not

only that but it appears as if each and

every one differs in its own unique way

so autism is rich in expression but

still faces limiting generalizations

today I want to talk about the autism

that I display the one that blends with

normality and can have catastrophic

impacts on people’s lives not

necessarily because of the autism itself

but because of the ignorance of it or

the failure to recognize that it is

there in the first place as I eventually

would discover now in social situations

we do have expectations upon one another

we use a certain kind of rulebook which

when followed rewards us with social

acceptance but I always felt that I was

different the trouble was I couldn’t

explain how and certainly not why it

felt as if I had been provided a

different rule book and that I lacked

the community to fall back upon that

could confirm to me that the way I

interpreted the world was valid too so I

grew up feeling very misunderstood by

pretty much everybody even within my own

family if I applied what would have been

my motives my intentions upon someone

else’s behavior or vice versa the

outcome was often negative and very

confusing so to me the social world

became scary and unpredictable now I did

notice however especially during my

school years here in Sweden that my mind

had been blessed with gifts like

analytical skills

an intense mental focus high capacity

for memorizing information which made

studying very pleasurable and easy so in

my academic pursuit

I came here to Gothenburg where I

studied at the university I later went

to the Netherlands where I attained my

master of music and today I live in the

UK working as a professional cellist in

the London Philharmonic Orchestra

touring the world but this however is

quite unusual for me to stand on a stage

just talking to you without my

instruments I can’t help the feeling

that I have forgotten it somewhere okay

so one man I think okay she place in

this great Orchestra she’s obviously

done pretty well for herself what’s the

problem well I have a very literal mind

and it constantly clashes with both

nonverbal and verbal subtleties in

social situations it gives me a very

direct line of approach and speech in

everyday conversations I still don’t

really understand the purpose of small

talk although I can appreciate it now

and jokes and sarcasm that fly

completely over my head my mind just

takes things in so literally it loves to

analyse everything my world is a very

intense one my senses are heightened my

brain absorbs everything in through an

amplifier my special interests can

completely consume me and my emotions

they go from the highest of high to the

lowest of low and their on and off like

a light switch my family blessed them

they can still stand in utter disbelief

when I go from a complete nuclear blast

to rainbows and butterflies in less than

two seconds literally so okay autism

influences my thoughts

my imagination my senses my emotions and

the way I process information but

without knowing this it was very

difficult to maintain friendships

because our social expectations were so

different

I could come across as odd and I

experienced a good amount of bullying

for it

but the most devastating the most

devastating were the eroding

misunderstandings that dominated the

relationships with the people closest to

me body signals misread words completely

misinterpreted it was so frustrating it

was like fighting a ghost something that

no one could really grasp not even the

counselors we sought for help so it was

a mentally agonizing situation that

persisted year after year and in my

mid-twenties I had reached a really dark

place and I started to be truly scared

for my future but then something

extraordinary happened that changed

everything

in 2006 I heard about Asperger syndrome

it is already an outdated term today but

it is still a form of autism on the

high-functioning end of the spectrum

three years later when I was 28 years

old I received this diagnosis and I

realized that a good third of my life

had been based upon a false perception

of myself imagine that

no wonder my life had been so confusing

but now now I started to see myself in a

new clearer context my whole life and

all my experiences just started to make

sense this launched me on an incredible

journey of enlightenment and

transformation I had finally been given

something that allowed me to explore the

relativity of my perception of the world

compared to others

I gained access into that mysterious

rulebook and I could start comparing it

with mine and so I learned to identify

my differences so in the coming years

I found efficient ways to improve my

social skills I learned to verbalize my

needs recognize my limitations and

develop my strengths I found it

successful strategies to navigate my

everyday life and significantly improved

all the disabling traits of my diagnosis

but this took a lot of commitment

dedication and hard work because autism

is a spectrum I had to become like a

researcher and collect a lot of

information from a lot of different

sources over a long period of time in

order to be able to complete my unique

life puzzle when I thought that I had

reached the level of conformity that

society demanded I kept feeling that

something was not quite right something

was still missing I could change the way

I acted but I did not change the way I

am my natural biological calibration is

and always will be autistic and the

problem I had now is to live up to this

new high social standards that I had set

for myself

I had come to understand my differences

but as you all know a relationship is a

without acceptance and understanding for

the real me I would never be truly happy

and this prompted me to one day make

write a radical move on the second of

April 2015 I announced my autism on

social media and I started to talk about

it with everybody

openly bang just like that I admit it

was absolutely terrifying because I had

encountered what was out there

the stigma the prejudice I was very

afraid that people would put their

preconceived ideas of autism onto me

rather than letting me show them what

autism can look like but this didn’t

happen what happened was that my life

changed completely almost overnight I

was met with curiosity and support

started to flood in from everywhere from

friends from family from colleagues and

from people I didn’t even know media

started to take notice and people who

recognize themselves in my story started

seeing how common the situation was and

how efficiently it could be reversed

using the same tools that I had it

inspired me to share my experience

further that the knowledge of

neurodiversity opens new communication

channels between us

by identifying differences we didn’t

know of before because they have been

hidden in our minds it unlocked my world

with the key to identify my differences

and to communicate these in a way that

we could all understand so today I am a

very happy person I’ve got wonderful

friendships I’ve connected deeper with

my family members and I’m experiencing

what it is to be in a happy healthy

relationship with a wonderful man who is

thankfully also very patient because

misunderstandings they still do happen

but now now they can be resolved so

they’re no longer threat to our

relationship we have taught one another

to read each other’s Rule books and it

I’m still autistic but I love it I

embrace it I can no longer align myself

with a word disabled because in

retrospect I understand that the

suffering that I have experienced does

not stem from my autism itself but from

the impacts of ignorance about it so if

we need a cure for anything it’s not for

differences are always challenging but

they are equally what makes this world

such a beautiful and spectacular place

by recognizing how we differ from each

other from a neurological perspective

helps us to coexist more smoothly

without having to carve so much in our

authenticity allowing our natural skills

talents and creativity more freedom to

roam not just for people on the autism

spectrum but for all by joining forces

we can create a larger picture of

ourselves and inspire each other on new

levels the autistic population is not an

insignificant one in the UK only we are

nearly 1 million people so knowingly or

not you will find us amongst your

friends and colleagues we might be a

family member your boss our neighbor you

might have fallen in love with someone

on the autism spectrum why why must we

wear a one size fits all because it fits

the majority of people should what is

neurologically accepted be determined by

was what’s the majority it’s human value

determined by what is the majority no of

course not but yet a lot of autistic

individuals

many can still not access their basic

rights as citizens because ignorance of

our difference still permeates every

aspect of society we deserve the same

access to education with knowledge and

flexibility regarding our unique

information processing we deserve the

same access to the workforce with

understanding for our sensitivity to

social deciphering and sensory input we

deserve appreciation and recognitions

for our skills and we deserve the same

access to adequate health and support

where the true source of our struggle is

better recognized all services have to

start evolving towards taking your

diversity into account or a lot of

people will continue to fall through the

net and that is ultimately harmful to

our entire society it is unacceptable

but because some don’t fit a standard

norm they risk being bullied

discriminated labeled as impaired and

pushed to the edge of society becoming

spectators behind a glass wall it is a

weakness that deprives us of

contributions from unique minds that are

valuable to us all because they are

different because they think outside the

box the quirky kid from school like me

has just as much to offer the world as

anybody else every human being is a

resource and society has to broaden its

framework to allow everyone a place in

it this may seem a daunting task but we

mustn’t be discouraged extraordinary

things can and have been done by

ordinary people no matter through which

spectrum we perceive the world thank you

[Applause] [Music]

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