[Music]
[Applause]
[Music]
Weiss and be bright over again the young
I hope you can see me I can see very
I marvel the organization team the young
boys and girls
what we need is programs but I was
looking through it I realized the same
thing that limits it all the spheres of
life and today I’m going to read you man
another example which was managed it was
in 2008 and now it is the decade how
this one example could probably give
message loving experience to do.how
of this country can people the disease
what is you PDF which is a very complex
disease very scary for us to survive we
need two things we need a luckily it
will be in blood sauce we did heart
attack if blood stops we get store if
blood does not stop then we get leading
in this disease that is a deficiency
from which the blood supply have these
persons like clapping ah if I can see
you can see that blood most out of their
body and they can treat it incidentally
this coming weeks disease so part of the
this is neither has a Maori women more
and if it does that affected there is no
escape they have now these are for the
excellent and the coordinates that many
hemophilia is a very old disease and it
became famous as a royal disease because
Queen Victoria was noted to be the first
one who have passed on this disease the
royalties of Russia and their friend
political so I must be fair with them it
was not there to it but what he owed of
this disease was more fascinating this
disease affects everybody across the
globe in a equal
for fashion there is no caste creed
reference there is no nothing to do with
your poverty or richness the incidence
of this disease is seen across the globe
we have seen it time and again and one
out of 15,000 born would give this
disease this is the kind of reading that
we see it could be it could be chest it
could be it could be it could be
anywhere
the most common ones are the ones that
in the joints and the muscles they just
knock them out the bleeding is inside
and the blood that we give you you know
but the large but the blood is put in
the body so long as it circulates the
moment it’s not circulating it isn’t bad
a joint in which a blood reading others
and indeed ellipses stops within minutes
would become bad for a month
because the blood that exuded out into
their joint becomes a poison for the
charge it’s very important that we make
sure that this bleeding
she said disease which was all over and
it occurs because of the deficiency of
the proteins in the in the in the blood
which was numbered as they were
discovered and the deficiency is from a
population protein called protein a or
protein 9 what is leave that a you
period 8 what is called a movie Lea P so
that the treatment becomes very easy
look at the colorful artistic model that
has been gone up for this
clotting factor this is the ribbon modem
where the changes are coming these
people Phoenix so that this protein
becomes non functional or dysfunctional
and this is the proposal another
fascinating you don’t need to look at
the complex picture but what you can
remember is this color the blue bar
shows in normal human D so this is a
normal man the father and this is the
mother who has got one X chromosome
affected by 2 mu P H this person
the gentleman is normal this lady is
normal
she has no problem and you look at her
talk to her do anything but one of their
son 25% chance would be family another
one is diseased father the disease will
show up in a manner which are common I
will appreciate the factor also remains
that this disease is very killing still
it remains in our society if you conduct
in the population and what has been
realized is even when it is tired and in
fact this means the patient in the new
ones come up so on one hand we have the
older ones going away because of the
disease and on the other hand me the
nature
bringing in one that has that was first
shown by this man JBS Haldane
he was a petition who walked out of a
dish within six for a different reason
and indicate head of the Medical
Institute did he like he actually became
a naturalized Indian in Hindu mythology
he’s not a mythical India and he said is
no country better than here
he was such a great planner that the
noble idiots would say we have not seen
a better science propagator dealt him he
was the one who gave this formula for
why hemophilia you have these mutations
which are not good for survival they
sustain so that the balance in nature
remains this has a communication this is
what he was talking about that you have
some inventions which try to come up to
bring the disease and these nature wants
to select so that it is contained and
the violence is maintained at the same
level that is what in 15,000 literacy
this is a communication nobody should
think my family one out of three would
develop a new change in new mutation it
can affect any family that means the
background how much is the problem here
I walk out without a rose with that
money we would expect about 1200 new
persons coming of it
they would separate the total that we
expect this is the new one so we would
expect about one leg to one left for the
title 10 of them roaming in our society
whether they’re taken care here poor or
not is what we will the depper
providing equal treatment to these
persons with hemophilia is a matter of
state subject so those who are born in
any would be looked after by daily
government and so also for the remaining
we started this in 2008 this was they
said that we had another Medical College
and this is the we started you know how
much communication will make it ours
people who will death and this was
achievement limited to asked by the
Honourable High Court of failing and
when we started we were given at our
room which can be opened only the
mosquitoes because it was not protected
but we kept going with our Ascenta and
we develop few of these small basic
things we thought were necessary we call
it a came up in here take care center
because we are looking after the T here
is visions we didn’t know there are many
we are now thinking about making a
24-hour we have the nurses coming here
and we were told that you should take
specialist let me tell you that Emma
Pina is looked up by the white
Federation and if you w little for the
world filtration of
they came to us they told us immediate
knowledge is unique he will feel
especially we said no we need basic and
business Proctor and we shall claim them
and these are the doctors that we drill
there and they became the pen that we
can think of and even the world would
we need this nothing and put it changed
we set the charge of that in Freedom
Center would be given within Lux we came
up with the name we came up with the
logo we came up with the philosophy that
will give treatment to all those who
need and get it protocol in place and we
did very well with it very very well
keeping in mind that at that time we had
undertaken a study fine developing
countries subject recall and junior
Morocco Oman and India and we found that
70% of these persons have disability 84%
and disabled joints at everybody had to
travel long distances to get some here
that’s in I mean we were talking and
these are the 19 Pacific
and saw what we were doing this was
happening at a time when they put
treatment was available for this gene
for this disease so to the injection of
the deficient protein and person right
how do you give it its like diabetes
diabetes is deficient in the cookie but
insulin unfortunately the world was not
giving those injections on a regular
basis and the water filtration was
fornicated prophylaxis which did a lot
of harm to the cause of the opinion it
should simply be like when the patient
was going in you look at this chart you
know this is the age of the patient and
this is the way we had all the data but
the point I’m making here is each dot is
representing the patient that time look
at all the dots they are concentrated
under Canadians 20s most of these dots
indicate that most of the patients
when he young why would they young not
suppose a newer younger population was
affected more by the movie death but
because the older ones did not survive
which was adequate inflation the second
we found that the majority of them was
food waiting now this was helpful to us
we’re taking up another project later on
which would help his food is prudence
but what our treatment was very
successful
this is a rice which we were thinking
for the treatment of this movie their
patient and the numbers are going up so
much that when we started we started and
nobody was not happy giving gates
because it was such good result that the
feedback did not come to us the feedback
went back to the administration to the
society and just giving simple treatment
I know
diabetes has brought insulin deficiency
I prescribe insulin that we look up
today is not the truth we have to go
beyond we have to learn from the patient
needs and with a disability can be
looked after not by the drugs but by the
frigid Rapids we are doing such good
work that a physiotherapist even wanted
to work in a syndrome they sent me of
the money she said no problem three
years she’s up there and brought in
monumental change in the health of these
persons one against a money but this
became very important we consider
realized there are social issues
psychological issues which we handled
and this is the time who became more
deliberate it’s part of their body and
those decisions became quite important
and looking after them really life of
this utility very easy these persons
were taking drug or drug products and
different time since they were taking it
they wanted to this of getting
infections which are associated with
blood and one of them is hepatitis
hepatitis has got a very very good
approximation but the fraction can be
given wood into the muscles you give a
injection into the muscle of a
hemophiliac the person will develop a
big please there give it over there is
not to be done and the vaccine was shown
to be effective with even people Thomas
published in sympathy butters we gave it
under the skin under in it controlled
research project and found his hundred
percent safe effective and see no
protections you know different
conversion was so poor that ever since
we’ve been using this mode for their
vaccination from they have at least two
dozen projects based on their needs and
one of the ones that I would like to
highlight is we undertook a project
where we in this case for assessing the
disease further from hemophilia in
developing countries and this was
presented and I wish this would come up
because that’ll give us a way of
monitoring them in a horizontal manner
and a vertical manner together that is
the time when we started interactive
twice in a month basis so we would have
a group of 25 to 30 people stretch to 40
and we would interact with the families
and the village or the field project so
we will give them a detail come up there
you can see them we made the nurses
pivot up as I said and then we move a
step further the injection has to be
given into the vein
unlike the diabetes where it can make
you learn under the scale once you give
it into the vein that is a big problem
some of the hospital and the nurses
refused to give it and you hear this
small piece so we decided the smaller
place a needle quad here we would train
them into self infusion and we leave
this in batches after being in
structured analysis of how it can be
done because they’re not much available
and we have instant hundred of them you
can good themselves on their own when
they go to a place different place they
have no problem injecting it they could
tell us they have the injections and
they could not get it in liquid now it
is the problem that we faced was
patients from outside edges started
coming in he was constantly only one
thought of our patients they were coming
from homes so we went out we went out to
the neighboring states Haryana jumbo in
Kashmir
Mata Pradesh and a Maricopa and created
this program so that it would set up
these claims this was this
in the north one more problem was coming
we have these patients coming from naka
de wereld who haven’t set up and coming
from Jacqueline would meet the damage
was ongoing witness travel for hours on
end so if you have this govern of one
country one treatment that’s because
there should be no delay in the
management of this and this program
would look up at a national level
starting up with the Raja and some of
them supported us and we started with
national level meetings and bottom
plates under ten different heads these
are the impacts of innocent living
systems and these were so successful we
are you collaborating with other
institutions in the country that now
most of these fields provide some kind
not only are they providing the trip
what it is bringing in collateral
benefits what collateral benefits we
found that the lands that are required
are the ones that test for the
corporation advocate eg mothers who are
pregnant they live in this country when
they’re done the single most important
force is bleeding and when we set up the
labs to the bleeding and the treatments
so I would say that with this disease
that we started we were able to create a
bankable across the country and will not
answer we became so much aware of
patience nice that he started coming out
into the public fora for other diseases
also that is Mira in modern days and the
last President Barack was invited to all
of these programs in Chennai and one of
these students boys ask sir what do i do
by if I go to space and I am eating this
protein factor into my body didn’t even
invite you what do I do
and he said any dissent agreed increase
independence and reduces self esteem
have an aim in life acquire knowledge
continuously education has build your
self-esteem and will give you wings to
fly it and we had a program for I
believe I can fly which support in this
channel thank you so much
[Music] [Applause]
[Applause]
[Music]
Weiss and be bright over again the young
I hope you can see me I can see very
I marvel the organization team the young
boys and girls
what we need is programs but I was
looking through it I realized the same
thing that limits it all the spheres of
life and today I’m going to read you man
another example which was managed it was
in 2008 and now it is the decade how
this one example could probably give
message loving experience to do.how
of this country can people the disease
what is you PDF which is a very complex
disease very scary for us to survive we
need two things we need a luckily it
will be in blood sauce we did heart
attack if blood stops we get store if
blood does not stop then we get leading
in this disease that is a deficiency
from which the blood supply have these
persons like clapping ah if I can see
you can see that blood most out of their
body and they can treat it incidentally
this coming weeks disease so part of the
this is neither has a Maori women more
and if it does that affected there is no
escape they have now these are for the
excellent and the coordinates that many
hemophilia is a very old disease and it
became famous as a royal disease because
Queen Victoria was noted to be the first
one who have passed on this disease the
royalties of Russia and their friend
political so I must be fair with them it
was not there to it but what he owed of
this disease was more fascinating this
disease affects everybody across the
globe in a equal
for fashion there is no caste creed
reference there is no nothing to do with
your poverty or richness the incidence
of this disease is seen across the globe
we have seen it time and again and one
out of 15,000 born would give this
disease this is the kind of reading that
we see it could be it could be chest it
could be it could be it could be
anywhere
the most common ones are the ones that
in the joints and the muscles they just
knock them out the bleeding is inside
and the blood that we give you you know
but the large but the blood is put in
the body so long as it circulates the
moment it’s not circulating it isn’t bad
a joint in which a blood reading others
and indeed ellipses stops within minutes
would become bad for a month
because the blood that exuded out into
their joint becomes a poison for the
charge it’s very important that we make
sure that this bleeding
she said disease which was all over and
it occurs because of the deficiency of
the proteins in the in the in the blood
which was numbered as they were
discovered and the deficiency is from a
population protein called protein a or
protein 9 what is leave that a you
period 8 what is called a movie Lea P so
that the treatment becomes very easy
look at the colorful artistic model that
has been gone up for this
clotting factor this is the ribbon modem
where the changes are coming these
people Phoenix so that this protein
becomes non functional or dysfunctional
and this is the proposal another
fascinating you don’t need to look at
the complex picture but what you can
remember is this color the blue bar
shows in normal human D so this is a
normal man the father and this is the
mother who has got one X chromosome
affected by 2 mu P H this person
the gentleman is normal this lady is
normal
she has no problem and you look at her
talk to her do anything but one of their
son 25% chance would be family another
one is diseased father the disease will
show up in a manner which are common I
will appreciate the factor also remains
that this disease is very killing still
it remains in our society if you conduct
in the population and what has been
realized is even when it is tired and in
fact this means the patient in the new
ones come up so on one hand we have the
older ones going away because of the
disease and on the other hand me the
nature
bringing in one that has that was first
shown by this man JBS Haldane
he was a petition who walked out of a
dish within six for a different reason
and indicate head of the Medical
Institute did he like he actually became
a naturalized Indian in Hindu mythology
he’s not a mythical India and he said is
no country better than here
he was such a great planner that the
noble idiots would say we have not seen
a better science propagator dealt him he
was the one who gave this formula for
why hemophilia you have these mutations
which are not good for survival they
sustain so that the balance in nature
remains this has a communication this is
what he was talking about that you have
some inventions which try to come up to
bring the disease and these nature wants
to select so that it is contained and
the violence is maintained at the same
level that is what in 15,000 literacy
this is a communication nobody should
think my family one out of three would
develop a new change in new mutation it
can affect any family that means the
background how much is the problem here
I walk out without a rose with that
money we would expect about 1200 new
persons coming of it
they would separate the total that we
expect this is the new one so we would
expect about one leg to one left for the
title 10 of them roaming in our society
whether they’re taken care here poor or
not is what we will the depper
providing equal treatment to these
persons with hemophilia is a matter of
state subject so those who are born in
any would be looked after by daily
government and so also for the remaining
we started this in 2008 this was they
said that we had another Medical College
and this is the we started you know how
much communication will make it ours
people who will death and this was
achievement limited to asked by the
Honourable High Court of failing and
when we started we were given at our
room which can be opened only the
mosquitoes because it was not protected
but we kept going with our Ascenta and
we develop few of these small basic
things we thought were necessary we call
it a came up in here take care center
because we are looking after the T here
is visions we didn’t know there are many
we are now thinking about making a
24-hour we have the nurses coming here
and we were told that you should take
specialist let me tell you that Emma
Pina is looked up by the white
Federation and if you w little for the
world filtration of
they came to us they told us immediate
knowledge is unique he will feel
especially we said no we need basic and
business Proctor and we shall claim them
and these are the doctors that we drill
there and they became the pen that we
can think of and even the world would
we need this nothing and put it changed
we set the charge of that in Freedom
Center would be given within Lux we came
up with the name we came up with the
logo we came up with the philosophy that
will give treatment to all those who
need and get it protocol in place and we
did very well with it very very well
keeping in mind that at that time we had
undertaken a study fine developing
countries subject recall and junior
Morocco Oman and India and we found that
70% of these persons have disability 84%
and disabled joints at everybody had to
travel long distances to get some here
that’s in I mean we were talking and
these are the 19 Pacific
and saw what we were doing this was
happening at a time when they put
treatment was available for this gene
for this disease so to the injection of
the deficient protein and person right
how do you give it its like diabetes
diabetes is deficient in the cookie but
insulin unfortunately the world was not
giving those injections on a regular
basis and the water filtration was
fornicated prophylaxis which did a lot
of harm to the cause of the opinion it
should simply be like when the patient
was going in you look at this chart you
know this is the age of the patient and
this is the way we had all the data but
the point I’m making here is each dot is
representing the patient that time look
at all the dots they are concentrated
under Canadians 20s most of these dots
indicate that most of the patients
when he young why would they young not
suppose a newer younger population was
affected more by the movie death but
because the older ones did not survive
which was adequate inflation the second
we found that the majority of them was
food waiting now this was helpful to us
we’re taking up another project later on
which would help his food is prudence
but what our treatment was very
successful
this is a rice which we were thinking
for the treatment of this movie their
patient and the numbers are going up so
much that when we started we started and
nobody was not happy giving gates
because it was such good result that the
feedback did not come to us the feedback
went back to the administration to the
society and just giving simple treatment
I know
diabetes has brought insulin deficiency
I prescribe insulin that we look up
today is not the truth we have to go
beyond we have to learn from the patient
needs and with a disability can be
looked after not by the drugs but by the
frigid Rapids we are doing such good
work that a physiotherapist even wanted
to work in a syndrome they sent me of
the money she said no problem three
years she’s up there and brought in
monumental change in the health of these
persons one against a money but this
became very important we consider
realized there are social issues
psychological issues which we handled
and this is the time who became more
deliberate it’s part of their body and
those decisions became quite important
and looking after them really life of
this utility very easy these persons
were taking drug or drug products and
different time since they were taking it
they wanted to this of getting
infections which are associated with
blood and one of them is hepatitis
hepatitis has got a very very good
approximation but the fraction can be
given wood into the muscles you give a
injection into the muscle of a
hemophiliac the person will develop a
big please there give it over there is
not to be done and the vaccine was shown
to be effective with even people Thomas
published in sympathy butters we gave it
under the skin under in it controlled
research project and found his hundred
percent safe effective and see no
protections you know different
conversion was so poor that ever since
we’ve been using this mode for their
vaccination from they have at least two
dozen projects based on their needs and
one of the ones that I would like to
highlight is we undertook a project
where we in this case for assessing the
disease further from hemophilia in
developing countries and this was
presented and I wish this would come up
because that’ll give us a way of
monitoring them in a horizontal manner
and a vertical manner together that is
the time when we started interactive
twice in a month basis so we would have
a group of 25 to 30 people stretch to 40
and we would interact with the families
and the village or the field project so
we will give them a detail come up there
you can see them we made the nurses
pivot up as I said and then we move a
step further the injection has to be
given into the vein
unlike the diabetes where it can make
you learn under the scale once you give
it into the vein that is a big problem
some of the hospital and the nurses
refused to give it and you hear this
small piece so we decided the smaller
place a needle quad here we would train
them into self infusion and we leave
this in batches after being in
structured analysis of how it can be
done because they’re not much available
and we have instant hundred of them you
can good themselves on their own when
they go to a place different place they
have no problem injecting it they could
tell us they have the injections and
they could not get it in liquid now it
is the problem that we faced was
patients from outside edges started
coming in he was constantly only one
thought of our patients they were coming
from homes so we went out we went out to
the neighboring states Haryana jumbo in
Kashmir
Mata Pradesh and a Maricopa and created
this program so that it would set up
these claims this was this
in the north one more problem was coming
we have these patients coming from naka
de wereld who haven’t set up and coming
from Jacqueline would meet the damage
was ongoing witness travel for hours on
end so if you have this govern of one
country one treatment that’s because
there should be no delay in the
management of this and this program
would look up at a national level
starting up with the Raja and some of
them supported us and we started with
national level meetings and bottom
plates under ten different heads these
are the impacts of innocent living
systems and these were so successful we
are you collaborating with other
institutions in the country that now
most of these fields provide some kind
not only are they providing the trip
what it is bringing in collateral
benefits what collateral benefits we
found that the lands that are required
are the ones that test for the
corporation advocate eg mothers who are
pregnant they live in this country when
they’re done the single most important
force is bleeding and when we set up the
labs to the bleeding and the treatments
so I would say that with this disease
that we started we were able to create a
bankable across the country and will not
answer we became so much aware of
patience nice that he started coming out
into the public fora for other diseases
also that is Mira in modern days and the
last President Barack was invited to all
of these programs in Chennai and one of
these students boys ask sir what do i do
by if I go to space and I am eating this
protein factor into my body didn’t even
invite you what do I do
and he said any dissent agreed increase
independence and reduces self esteem
have an aim in life acquire knowledge
continuously education has build your
self-esteem and will give you wings to
fly it and we had a program for I
believe I can fly which support in this
channel thank you so much
[Music] [Applause]
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