[Applause]
[Music]
good evening everyone so I introduced myself
jackson relay no link so I’m
came tonight to replace cédric
villani who could not do it
shifting
so here I am here tonight
to tell you a little about my life that
is like my last name we’re going to say
original I will not say a life anymore
enviable because first of all I do not
not think every day of the month and then
because I will let you judge
by yourself
so actually if I’m here tonight
it’s to talk to you about something
of my disease cystic fibrosis
I have always been sick
diagnosed at the age of 4 1987
after long wanderings and medical
the time the doctors did not give
dear of my skin and did not give
a lot of chances of short survival
term
from there we started for myself
the real troubles including stays
in institute in palavas the waves
it can make you dream like that
only here I was suffering from
many antibiotic courses
intravenous high dose and that’s it
a little bit my opinion luckily the
children this strength to be able to adapt
and finally I managed there even
in some squalid places to
have fun like all kids like
all the boys and girls of my
age on this slide we can see
some nurses smoking
their cigarette in a dedicated service
to cystic fibrosis that affects
mainly the lungs it’s
80s what a little bit
particular you will notice it has when
even the window is open
it was not monsters
so that’s going back and forth it’s going to last
until I was about 9 years old
day when doctors announce to my
parents in my presence that’s left
only a few years to live
4 at the most and that we will have to
start to get the idea that so
that’s where you understand how much
the medical profession can sometimes do
proof of finesse
happily my parents not resigned and
even resolved then decides to withdraw
of the he takes me on paris see a
luminary
the great specialist in cystic fibrosis
the professor gerard lenoir to whom I
pay tribute today that is
unfortunately died with this man on
will start addressing the topic that we
gathered tonight since it was that
really someone who was in the
conquest of the territory
this true daring genius they dared
take risks go on
complicated terrain even facing cases
desperate as mine thing
impossible nowadays where most
therapeutic trials are
unfortunately reserved for people who have not
not too much damage to the disease
and of which I am systematically excluded
second this great character so go to me
take it in hand and will bring me in
in an innovative protocol of any
totally unofficial way and will me
to break the deadlock in which
I found myself
thanks to him I have not only been
saved but I knew from my 10 to almost
20 years true rest vis-à-vis the
disease
I was able to practice sport so
intensive and I could also and I was able
also follow normal schooling and this
until my bachelor’s degree has
only specified is puberty
coming in and it’s a difficult time
like some of that here and besides I do not
am not very good treatments
necessarily and the disease is not very
not good with the changes either
hormone
so I saw the old demons reappear
things really got worse on the
day when I contracted a terrible germ
the better known pseudomonas aeruginosa
in my midst under the name of
pyocyanic it’s the pet peeve
who share my path
we are in 2003 at least 5 years old
microbes will literally gnaw but
for I’m not going to seduce I’m going to lose
about 20% of breathing capacity
already knowing that I will not stay at
it’s hard to say I’m going
see my lung capacity dropped to 20
30 % which is very few errors
many successful antibiotic courses
successive ones is completely
useless the doctors are clueless I
spits every day the equivalent of a
goblet of mucus it’s the right word a
little annoying speech because after he
Two years ago a cocktail of what to do
a case of savings so some of
these wars are bloody
which proves that every day but the
lungs are deteriorating more and more
it’s a little stalemate is bigger
thing to do but only here so
do not worry enough a little bit
more positive
thereafter I’m night owls of
nature and during one of my
many insomnia I was able to watch
on a public service channel
a report called the war
of eiffage in this report we follow
an American with a sore at
knee is open for several
years is colonized by a
Staphylococcus aureus ingest have just as
friendly than mine the subject of the
documentary his trip to georgia
reached a dose of this infection
joint osteo is the only option
given to him is amputation
only that is not counting
on our Georgian friends and their famous
bacteriophages so that’s
bacteriophages are tiny viruses
which measures between 25 and 200 nanometers and
who feed on bacteria actually
they have been completely forgotten in
west and are still used there
and are known as
of antibiotics of stalin that makes a
little fear said like that it does not prevent that
this gentleman so after several
treatments and three weeks of care
leave home at the other end of the world
without his crutches was called closing
his affection ra dickey amazement
so I talk to my doctor and my
brother who is also doctor all the
world was laughing at me if it worked
a long time that we know nothing and
at home and in our hospitals
so nobody really believes it except
that by doing some research
again I realize not only what
is not quackery
but in addition the bacteriophages have
a real efficiency and that there is
no reason they do not work
on my infection
it is therefore alone supported by my mother that
I decide to contact
the institute on the spot in tbilisi in
georgia with whom I immediately
very good exchanges
we are in 2008 the war between the
Russia and Georgia breaks out
I’ll have to wait if I ‘m going
to undertake a journey in the end that you
wait, you would have been beneficial
my brother ended up deciding to
accompany me and so it’s all
two we go there in February
2009 pardons for georgia which
right sort of war disease but there
in many locked up
I’m not a lot I do not have
traveled a lot for once
change of scenery is total
the post sovietism to something of
very particular disorienting it you
go stray dogs in pack
you have an anarchic traffic
with old children trapping
streets is another world
so I go to an institute elia va who
manufactures eiffage and I do and I
meet a girl left the ace
excellent pronunciation exercises
but it’s also the microbiologist in
head of the institute and what with her that
I have been in contact since now
more than a year
I am the first French first
person with cystic fibrosis and
apart from a few Americans in
the one I told you about earlier
first western to go on the spot
not very reassuring especially since the
support is really minimal
I have to go once every
three days in a clinic check
that everything goes well
other than that I’m leaving with
bacteriophages under the arm in my
hotel or happy for the blow that
my brother be here so I start but
aerosol apparently very happy to be
pretty smiling except that after
a few minutes breath
the bacteriophages in nature this
are the natural predators of
bacteria there are everywhere on your
clothes on your poor in the water
in wastewater even if you see
what I mean and actually their fashion
of action is pretty simple it ties itself to
the bacteria inject their material
genetics they use the
cellular machinery of the germ to
reproduce
until it explodes once
their hosts dead they spread
pre-turn colonies of bacteria and
so on facing the infection
pulmonary that there are in the lungs the
little beasts are at the feast except that
good is bacterial elise ie
a large number of dead bacteria in
the lungs we will excite my system
immune and belly is born a huge
inflammatory reaction
after one week my condition is the
even my oxygen level is falling
free and I can not clear the
bronchi
the problem is that my brother who
stay a week with me must return
in France and that I find myself alone in
georgia under the remote surveillance of
some Georgian doctors who
baragouine in English as elaborate as
mine as much tell you it’s a
little panic
except that I have gritted my teeth and
after ten days miracle or mental
of oxygen soars
I start with being able to spit clear
the bronchi and I find that I trash
ten times less than before I returned so
in France is we arrived at my mother
see directly change the bet
was the good since this stay in state
is stabilized the disease is still there
with the problems they help each other
but I try to do like you and
lead a life as normal as possible
I have since been able to work for example
as a freelancer in the morning vaucluse it’s
not far from here
for more than four years I
also
I discovered there
associative political workings of our
good old city I also mounted
an association fage hopes that had
who even if it does not work anymore
today that a little like she the
operate before they allowed me should
to the recognition of bakir fages in
our countries
I also participated in many
reports on the subject is also at
conferences so it was this
experience really opened me to the world
in georgia things also have a lot
changed names the media having
greatly relayed the existence of
bacteriophages by day
many people from our countries
Westerners are eager to surrender
on the spot to benefit from treatment
which blew up the tariffs of
more money hungry people of course
took hold of the thing and we go up
travel agencies fage tourism that
offers stays for very large sums
important if I wanted today
benefit from this treatment
I will not have the means
fortunately I still have
contacts on the spot and I still arrive at
have me deliver bacteriophages from
way not very legal at home
directly at home
I wanted tonight to pay tribute to
people like managed in gabarre someone from
very brave
it’s the general manager to do here
in this format the only laboratory
French to produce eiffage in France
and who does a crazy job and who is
about to succeed his bet since
today there are many tests
therapeutic in France from
fages and who have just made here
pharmas and this gentleman does a job
wonderful
i would also like to thank fabrice
sabers fabrice barrès what I know me
I with his nickname never know what
tomorrow have invited tonight talked so
it was my story of conquering
thanks for listening to him at
meet again
[Applause]
[Music]
good evening everyone so I introduced myself
jackson relay no link so I’m
came tonight to replace cédric
villani who could not do it
shifting
so here I am here tonight
to tell you a little about my life that
is like my last name we’re going to say
original I will not say a life anymore
enviable because first of all I do not
not think every day of the month and then
because I will let you judge
by yourself
so actually if I’m here tonight
it’s to talk to you about something
of my disease cystic fibrosis
I have always been sick
diagnosed at the age of 4 1987
after long wanderings and medical
the time the doctors did not give
dear of my skin and did not give
a lot of chances of short survival
term
from there we started for myself
the real troubles including stays
in institute in palavas the waves
it can make you dream like that
only here I was suffering from
many antibiotic courses
intravenous high dose and that’s it
a little bit my opinion luckily the
children this strength to be able to adapt
and finally I managed there even
in some squalid places to
have fun like all kids like
all the boys and girls of my
age on this slide we can see
some nurses smoking
their cigarette in a dedicated service
to cystic fibrosis that affects
mainly the lungs it’s
80s what a little bit
particular you will notice it has when
even the window is open
it was not monsters
so that’s going back and forth it’s going to last
until I was about 9 years old
day when doctors announce to my
parents in my presence that’s left
only a few years to live
4 at the most and that we will have to
start to get the idea that so
that’s where you understand how much
the medical profession can sometimes do
proof of finesse
happily my parents not resigned and
even resolved then decides to withdraw
of the he takes me on paris see a
luminary
the great specialist in cystic fibrosis
the professor gerard lenoir to whom I
pay tribute today that is
unfortunately died with this man on
will start addressing the topic that we
gathered tonight since it was that
really someone who was in the
conquest of the territory
this true daring genius they dared
take risks go on
complicated terrain even facing cases
desperate as mine thing
impossible nowadays where most
therapeutic trials are
unfortunately reserved for people who have not
not too much damage to the disease
and of which I am systematically excluded
second this great character so go to me
take it in hand and will bring me in
in an innovative protocol of any
totally unofficial way and will me
to break the deadlock in which
I found myself
thanks to him I have not only been
saved but I knew from my 10 to almost
20 years true rest vis-à-vis the
disease
I was able to practice sport so
intensive and I could also and I was able
also follow normal schooling and this
until my bachelor’s degree has
only specified is puberty
coming in and it’s a difficult time
like some of that here and besides I do not
am not very good treatments
necessarily and the disease is not very
not good with the changes either
hormone
so I saw the old demons reappear
things really got worse on the
day when I contracted a terrible germ
the better known pseudomonas aeruginosa
in my midst under the name of
pyocyanic it’s the pet peeve
who share my path
we are in 2003 at least 5 years old
microbes will literally gnaw but
for I’m not going to seduce I’m going to lose
about 20% of breathing capacity
already knowing that I will not stay at
it’s hard to say I’m going
see my lung capacity dropped to 20
30 % which is very few errors
many successful antibiotic courses
successive ones is completely
useless the doctors are clueless I
spits every day the equivalent of a
goblet of mucus it’s the right word a
little annoying speech because after he
Two years ago a cocktail of what to do
a case of savings so some of
these wars are bloody
which proves that every day but the
lungs are deteriorating more and more
it’s a little stalemate is bigger
thing to do but only here so
do not worry enough a little bit
more positive
thereafter I’m night owls of
nature and during one of my
many insomnia I was able to watch
on a public service channel
a report called the war
of eiffage in this report we follow
an American with a sore at
knee is open for several
years is colonized by a
Staphylococcus aureus ingest have just as
friendly than mine the subject of the
documentary his trip to georgia
reached a dose of this infection
joint osteo is the only option
given to him is amputation
only that is not counting
on our Georgian friends and their famous
bacteriophages so that’s
bacteriophages are tiny viruses
which measures between 25 and 200 nanometers and
who feed on bacteria actually
they have been completely forgotten in
west and are still used there
and are known as
of antibiotics of stalin that makes a
little fear said like that it does not prevent that
this gentleman so after several
treatments and three weeks of care
leave home at the other end of the world
without his crutches was called closing
his affection ra dickey amazement
so I talk to my doctor and my
brother who is also doctor all the
world was laughing at me if it worked
a long time that we know nothing and
at home and in our hospitals
so nobody really believes it except
that by doing some research
again I realize not only what
is not quackery
but in addition the bacteriophages have
a real efficiency and that there is
no reason they do not work
on my infection
it is therefore alone supported by my mother that
I decide to contact
the institute on the spot in tbilisi in
georgia with whom I immediately
very good exchanges
we are in 2008 the war between the
Russia and Georgia breaks out
I’ll have to wait if I ‘m going
to undertake a journey in the end that you
wait, you would have been beneficial
my brother ended up deciding to
accompany me and so it’s all
two we go there in February
2009 pardons for georgia which
right sort of war disease but there
in many locked up
I’m not a lot I do not have
traveled a lot for once
change of scenery is total
the post sovietism to something of
very particular disorienting it you
go stray dogs in pack
you have an anarchic traffic
with old children trapping
streets is another world
so I go to an institute elia va who
manufactures eiffage and I do and I
meet a girl left the ace
excellent pronunciation exercises
but it’s also the microbiologist in
head of the institute and what with her that
I have been in contact since now
more than a year
I am the first French first
person with cystic fibrosis and
apart from a few Americans in
the one I told you about earlier
first western to go on the spot
not very reassuring especially since the
support is really minimal
I have to go once every
three days in a clinic check
that everything goes well
other than that I’m leaving with
bacteriophages under the arm in my
hotel or happy for the blow that
my brother be here so I start but
aerosol apparently very happy to be
pretty smiling except that after
a few minutes breath
the bacteriophages in nature this
are the natural predators of
bacteria there are everywhere on your
clothes on your poor in the water
in wastewater even if you see
what I mean and actually their fashion
of action is pretty simple it ties itself to
the bacteria inject their material
genetics they use the
cellular machinery of the germ to
reproduce
until it explodes once
their hosts dead they spread
pre-turn colonies of bacteria and
so on facing the infection
pulmonary that there are in the lungs the
little beasts are at the feast except that
good is bacterial elise ie
a large number of dead bacteria in
the lungs we will excite my system
immune and belly is born a huge
inflammatory reaction
after one week my condition is the
even my oxygen level is falling
free and I can not clear the
bronchi
the problem is that my brother who
stay a week with me must return
in France and that I find myself alone in
georgia under the remote surveillance of
some Georgian doctors who
baragouine in English as elaborate as
mine as much tell you it’s a
little panic
except that I have gritted my teeth and
after ten days miracle or mental
of oxygen soars
I start with being able to spit clear
the bronchi and I find that I trash
ten times less than before I returned so
in France is we arrived at my mother
see directly change the bet
was the good since this stay in state
is stabilized the disease is still there
with the problems they help each other
but I try to do like you and
lead a life as normal as possible
I have since been able to work for example
as a freelancer in the morning vaucluse it’s
not far from here
for more than four years I
also
I discovered there
associative political workings of our
good old city I also mounted
an association fage hopes that had
who even if it does not work anymore
today that a little like she the
operate before they allowed me should
to the recognition of bakir fages in
our countries
I also participated in many
reports on the subject is also at
conferences so it was this
experience really opened me to the world
in georgia things also have a lot
changed names the media having
greatly relayed the existence of
bacteriophages by day
many people from our countries
Westerners are eager to surrender
on the spot to benefit from treatment
which blew up the tariffs of
more money hungry people of course
took hold of the thing and we go up
travel agencies fage tourism that
offers stays for very large sums
important if I wanted today
benefit from this treatment
I will not have the means
fortunately I still have
contacts on the spot and I still arrive at
have me deliver bacteriophages from
way not very legal at home
directly at home
I wanted tonight to pay tribute to
people like managed in gabarre someone from
very brave
it’s the general manager to do here
in this format the only laboratory
French to produce eiffage in France
and who does a crazy job and who is
about to succeed his bet since
today there are many tests
therapeutic in France from
fages and who have just made here
pharmas and this gentleman does a job
wonderful
i would also like to thank fabrice
sabers fabrice barrès what I know me
I with his nickname never know what
tomorrow have invited tonight talked so
it was my story of conquering
thanks for listening to him at
meet again
[Applause]
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