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IL CORAGGIO DI ESSERE FRAGILI | Annalisa Rabitti | TEDxReggioEmilia


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all
I am a few to tell you a story
that the story that starts from a wound
all mine
but it is also the story that tells how
this wound slowly succeeded
open up to let the dreams of the
others somehow become the dream
of an entire city
I have to talk about myself and it’s not always
very easy to do it about 15 years ago
he worked in the field of communication
for a professional he had a life
normal also happy I decided to do
a son
and that child, however, is exactly one
walk because my black child
like the others
mine was a child between gilera a
different child
my son was a disabled child
when a disabled child is born
I tell when they ask me and it is
another expression if not that of a
train a train in the face all that
that were the expectations of a lifetime
what the expectation towards one
motherhood there are completely broken
in front of what had happened I did not
I had the flowers did not have a fool
on the pink blue door did not have
all those things could not even
wash the diapers
my mother’s experience was
an experience where wires existed
Diagnosis incubators is the most serious thing
what happened to me was that it is certain
I feel the future stolen from me
these yes mother in front of a son and
I hope in his future I could not look
no more than a day an hour
not even a week for me anymore
trust that it would not happen
but slowly we say that life is
evolved has changed we have succeeded
to face it and its recovery
colors
I started by looking at
fix the back roads to
exist and make me change me from
that existence I could no longer be
what I was because martino was me
deeply changing and could not
stay the person who was doing the
work I was doing
in trying to understand that my daughter
I met the person you have
met before met brunette pian
we realized that martino
they were being full deep full of
thoughts full of words martino a
boy shut up like John and does not speak
boy tetra walls with spastic then
is in the wheelchair does not move does not eat
on the continent but it is deeply
intelligent deeply full
deeply human
these are some of the words that he
he writes that I think they say so many
things, so I brought them to have
martin see this thing slowly
but it happened that I too had changed
and I could not continue to take care of
fuchsia tones of fashion t shirt
design and I have sought an answer has
inside of me what happened I have
started to unite two things they will have
success in life then mine
passion for design, mine, mine
existence and he therefore the fragility e
we are a group of friends
we found that the labs that lab is a project
where creativity fragility and yes
meet and where they are developed
creative projects together with the guys with
fragility
we started from words and words
in this case they were what you want
of my son but they were also those of
thirty other boys with fragility like
he who has these words that yes
I think they are words Breast stones as
those you have heard before are
ungarettiana because they are tiring
full they must be there and they come
said when they must be there
so they started with paintings then
with t shirt and then with objects slowly
we have known other fragilities and
so today we are around 300 le
people here from the silent guys but
even guys who draw that
they assemble that they do things we are with
working to achieve what a
I dream of what John said before
the future of an intelligent life then
what happened I have this is also a
book I wrote about his story
let’s say that slowly I’m in fact
found as a person for fallen
something happened that they asked me
my mayor asked me but asked
even my city ​​to apply to delle
elections then to make a journey
politic
I did not know how to deal with it until
when I did not understand that I had to find
inside me
the reason just that already canvas could
wear the reason why I could do it
because I could do this for the
my city and I have slowly invented myself
a project that is called reggio emilia
city ​​without barriers but from here and a bit
I will use it because today it is no longer a
project only mine but a project that
it’s part of a whole city because
we are in many portals
and started from here this is a map
that look very much like mine
the map of a mother with all those
forces that must open to manage the
life of a person fragile of his own
son so you see school support
health development are all doors le
people and then she another map with
all the phones that obviously do not have
brought to all contacts for
manage to manage the life of this on
his frail boyfriend and of the
same thing that I did and do
all the families like me from there I have
thought we thought about trying
overturn the perspective therefore not
think of a reduced welfare project
from above but try to try for
start from the needs of people and
so talk with mothers with fathers
with all those people who knew
really what they needed and in this
so let’s say that this project was born
which basically had four
macro topics nine working tables is
then something happened that happened
whole city has arrived
the project broke out in my hands e
we are so many today that we have
worked on nine work tables that
They do a little work for all those
they are aspects of the life of one
person with disabilities beyond the
care
so what seemed to be the
primary need therefore to clean the
eating the string decent places was
just became the
departure from which this city could
to work
obviously because this city had
those those basic features e
so we are given to occupy all that
that went beyond the care for which
the passions the emotions interest the
sexuality, affectivity, the soul that then
what each of us does all the
mornings but that often for one person
fragile date for granted but not
we went right there from here
just leave a lot of projects
this to make you see night of light
that an evening in which the whole city of
reggio emilia arrives and they turn off
lights are lit thousands of candles
to witness the importance of it
difference and disability like
resource and then then slowly too
of the fragility the projects are
many I do not want to list them
there are 49 projects that
in a spa of 34 people we have
developed over a period of several years
precisely because they are no longer monsters
They have really become all
schemes of having one thing I believe the
ability to be brave
the courage to say that I am
I’m crazy. I’m crazy
effort and take this effort and
bring it to make it one
opportunities for everyone else
we did an accessible gym
per se serious disability we did
creative projects where art and fragility
they joined together and the thing
incredible the multiplier effect that
people gave is the fact that the
people have really brought this
their experience in this this
great thing that I believe if now city
without barriers
then slowly we say that it is
the speech was further amplified
in the sense that precisely in reasoning in
think about new projects we are there
back to questioning about something is that
what we have called you has
we asked ourselves for the right to beauty
why
often the places the projects and the
situations related to fragility in
some honest way left the beauty
out of the door out of the door like
if in this city ​​especially because
we are a beautiful, practical city where we are
good we are efficient but we are
sometimes we say that especially in
this field we were a little gray for which
you were these places a little sad and
here and then what we said
we tried to understand how to do it
bring back beauty and try to say that
nice and the good could be together
rather that just because if a person
already fragile if we are we make it
we make it and put it in places
even ugly we do with this person
what is worth a little bit of value
aesthetic and reality we are
marginalizing in turn is a way
to further offend so we are
said we participated in a
announcement of the ministry of equal opportunities
we won we arrived second but
with the greatest national funding
we tried to do something that
I think very important we tried to
write the manifesto of the right to
beauty starting from fragility that
we had an event
participative we wrote this
poster that says I believe a lot of things
important
we were so many, I do not know how
tell it to you if not later with a video
that I will show you why here too
it was truly a charm of something
incredible that a city interests is
It was a whole day to work for
write this manifesto to something
dreamy of which I am very proud
as a citizen
the manifesto what the project wants
to do wants to try to say that to try
to improve the places of fragility
make them beautiful places
so we have a lot of architects
graphic engineers who are coming
as a volunteer to try to
improve these places want to try
also to improve the design of the
services and then try to say that
within that of the network of
services creativity and beauty must
existing must participate in the
daily life of these guys because
right in the intersection of fragility and
beauty we realized that there is one
incredible generative capacity
rehabilitation with which the lip we have
proved because boys people
fragile when they encounter beauty
they raise their heads but at the same time
even those who are the various actors
of creativity in kneading in
touch in returning to the places of
truth somehow have a raise
look and then this meeting is a
some magic and then we also want
try to make sure that the companies of the
city ​​and therefore that the companies are with
we and try to make products together
not only as it does that as does the
app that does very well and is one of the
project partner
but just as a whole city to say
rob also mine to say that fragility
this is not a question of employees
work is not a question of technique but
it’s a matter of each of us there
touches closely and we can not
forget that this exists is the
Day of Truth and Beauty
this is a bit the signature of the manifesto
late evening gas when after so many hours of
I work and I believe they have not come
to say, for example, max casacci
subsonic came paolo verri di matera
European Capital of Culture
they came tam architects are those
that build hospitals for
emergency everyone has come so much
mixed together to write
this manifesto
I then the video that
I hope he can start telling
that day when we tried to
do this thing all together
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