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Finding a meaning to your illness | Charbel Maroun | TEDxNDULouaize


[Music]
hi so I’m gonna start with a quick
simple question and it’s who has ever
encountered change in his life okay so
let’s take all of your thoughts all of
you thought about and let’s put it in
the globe let’s put it in the middle of
the scene and look at it from the
outside and I bet that we can see so
many points the first one is that change
can occur to anyone at any time any day
it could be just a small change that
happens in our daily life that we don’t
even notice and then it could go up to
life-changing events life-changing
changes so it could go from something
really small to something really big and
then moreover than that it could go from
something that creates positive vibes in
our life that creates happiness joy
motivation many positive feelings that
we can feel I don’t know success and it
could lead to devastating events anger
fear depression demotivation and what’s
more important to me is the last point
that sometimes change is self triggered
but something that we choose to do it’s
something that we decide to happen while
sometimes it is something totally out of
hands something totally random something
totally unexpected I was 15 years old I
don’t remember I ate anything
contaminated I don’t remember being
exposed to any super radiation nuclear I
don’t know what and I don’t remember
doing anything wrong but two weeks
before my 16th birthday I was diagnosed
with blood cancer leukemia
so my chain in my life I I was a
full-time student I was just going to
school and then in a glimpse of a second
my life changed from a full-time student
to
full-time patient so instead of waking
up to catch up my school bus and go
spend the day at school I used to wake
up to have my daily blood test and
instead of going out there and embraced
life I was in my room fighting for life
so this is what happened when I was 15
years old during my treatment I used to
need a lot of blood blood units and
platelets so and it was really hard to
get these people to donate and my I
remember really well that my parents and
my family used to do everything they
could just to get someone to donate and
this triggered in me the the need to do
something to change because there was
something wrong and you know when you
live their life backstage life not the
regular life you see the misery of
people you see the darkness of people I
was at the hospital for three years and
I know a lot of cases and I know how
much people struggle to find the blood
donor sometimes and I could tell you
that without these donors I wouldn’t
have been here and a lot of patients
wouldn’t have been here
so just take a second and I’m gonna go
back in time and show you that the the
doctor says I need blood units and it’s
urgent
so I’m there and my hospital room and
then someone out there left everything
they’re doing maybe there aren’t doing
anything but they left everything they
are doing to leave to go to the blood
bank and to sit there to have a needle
in hand for I don’t know how much time
and to give part of themselves to
someone they don’t even know to someone
they don’t even maybe recognize they
won’t even meet and this is me without
anything in return without even no
recognition so just imagine how grateful
I am for these people and how grateful
our society should be for these people
because they were part of our lives and
without them we couldn’t have made it
here and I remember really well
the
person who donated the most platelets
was this guy who brings my dad the
morning coffee at the office and this
guy he never and he ever refused to take
a single penny and he donated more than
three times for me so just this is a
perfect example of how in these
circumstances just being humane rises
above everything
I don’t know race religion beliefs just
being a humane in these situations rises
above everything and the sad thing about
all of that is that now I cannot donate
blood so I just find anything maybe use
my story to motivate people to go and
donate blood because every single one of
us can have a role in our society to
make an impact in our society and during
all of these I was once looking at
social media and then I saw people
posting these pictures and then I was
really curious to know what these
pictures about what’s the red-nose the
the hospital corridors and then a few
months later I was a member of a team of
volunteers and what we do is clown
therapy I didn’t know what was clown
therapy about all I knew is that we go
to kids room at the hospital and we do
something but what’s this something I
thought that with my experience with
what I’ve been through I can really
connect with these kids I can really
relate because one day I was at their
place I know what it feels like and I
know what they would need to to have
this I’m gonna talk about it so here are
some pictures so basically what we do is
that we go to these hospital rooms I
know it’s not only about being in clown
and being super energetic because what
we learn to do is to connect with these
kids to know what they want to know what
their need is because some people some
kids they want super energy
ten minutes fun magic anything and
some kids they just want the classical
song and others they just wanna I don’t
know with the puppets play and you
should see the reaction on their faces
and on their parents faces and what I
think the mission is about the number
one thing about this mission is to be
able to take that kid with his parents
from where they are from the misery they
are living in from the darkness and yes
it’s darkness and to take them from
there and for just 10 or 15 minutes to
take them out and to show them another
part of life which is true it’s not a
dream this is another part that maybe
they are not living now but just to tell
them that one day you will get there
life is not just about misery and
darkness you will get there one day and
you should believe that you can get
there one day
so this has balloons anything and this
is how we salute our soldiers right now
I am 24 years old and who know who
thought I would be here one day I
remember really well when I dropped off
from school when I was diagnosed that my
only wish was to go to school to spend
some days with my friends because you
know living the life at the hospital was
was crazy so and I dropped off from
school but there was one thing that I
didn’t want to fail my class I didn’t
want to fail in my life this is why as
soon as I got physically a little bit
better I started to study because I
didn’t want the train of path of life to
pass by and I’m here stagnated looking
at it without doing anything so I
decided to study and no I didn’t fail
any class I graduated with my with my
colleagues with my friends and then I
sat for the SAT test for three times and
two out of three times I went with a
mask on my face and with the shiny bald
skull and yeah I failed all of these
three tests I didn’t
get a score I got admitted at ndu and an
engineering program and the first first
year and a half I used to leave
sometimes and you because my blood tests
weren’t good my immune system wasn’t
ready to fight so I had to leave but I
didn’t stop I pointed my finger to the
horizon and I planned my life as if I
wasn’t going to die and this is what
each of us should do and I have made it
but I have not made it because I am such
a superhero over here oh because you can
make it and everyone can make it is not
not only through cancer through any bump
in our life and through any change in
our life and this is a few pictures
thank you
[Applause]
[Music]
you
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