[Music]
I’d like to introduce you to honor my
patient this is the
24 years old he’s from Nigeria she’s 32
weeks pregnant and she has HIV infection
I’ve been treating her with anti
retrovirals and she’s been doing really
well her HIV viral load is now
undetectable thereby reducing her rate
of transmission from almost 50 percent
down to less than 1% she’s had no major
side effects on therapy and I’ve been
really pleased with the progress her
baby’s been growing well and she seemed
very happy as well she recently came
back for a follow-up visit and she told
me she had stopped taking all of her HIV
medications I was pretty shocked I said
well why did you do that and she said
that she had read an article on the
internet saying that medications and
pregnant women can cause problems from
the baby and so she thought that wasn’t
healthy being on these medications so
she decided to stop and I told her well
that’s for non hiv-positive non
hiv-positive pregnant women not in your
particular case so unfortunate she made
a decision that may cost the HIV status
of her young child and it’s sad but
that’s what she did and she
misunderstood the information that she
found on the Internet so how many of you
have actually searched the Internet
you’ve had some symptoms you’ve gone
online only to diagnose yourself with
some horrible disease you know and get
get nervous about it’s very common and
in fact online medical searches are the
second most common search that we do
online just underneath online shopping
actually 80% of you go online to look up
health care information and it’s a very
common thing many of these things that
that we look up are useful but they can
also be a two-edged sword you can look
up and find something that doesn’t
pertain to you just like my patient
misinformation and then you may make a
decision that is not in your best
interest but one of the reasons why we
spend so much time looking up
information is because Americans have a
lot of chronic medical problems 60% of
Americans actually have one chronic
medical condition and 42 percent of
Americans actually have two or more
chronic medical conditions a chronic
medical condition
is actually having to go to a doctor be
monitored for a year and receive therapy
so that’s what’s the definition of a
chronic medical condition so if you can
imagine two or more that’s quite serious
many of these are actually lifestyle
conditions things like obesity diabetes
high blood pressure high cholesterol
heart and lung disease things that we
can actually do something about and
that’s why people are spending so much
time looking on the internet about these
medicine has a very significant
principal agent issue the agent is the
physician somebody who’s highly educated
highly trained a lot of skills the
patient is usually someone who’s sick
hurting in need and there’s a quite a
bit of imbalance between the two people
not long ago
healthcare information for a patient was
not available to the patient remained
with the doctor and the patient actually
also had no way of looking up healthcare
information on their own the internet
and technology has brought about a
democratization of healthcare
information people can access
information now anytime anyplace on any
device but you should also know that
somebody can put out information anytime
anywhere on any device whether that
information is true or not whether it’s
misinformation or outright lies and you
need to be able to determine how do I
determine the difference take a look at
this busy slide multiple sources of
healthcare information you can look to
any of these places and find information
about health care we are bombarded by
this on a daily basis it’s information
overload all of these sites can actually
influence whether you decide to seek
medical treatment or not go to the
doctor or stay home vaccinate your child
or take the risk of having that child
get a serious medical illness actually
even starting a fad diet the keto diet
right I mean all of these sites will
tell you whether something’s right or
wrong for you many of these sites are
actually supported by advertising
even lobbying groups so that can create
a lot of bias conflicts of interest so
how do you know whether what you’re
accessing is actually true or not how do
you make that decision where you get
your healthcare information really
matters it does I say that you should
look to well-known and prestigious
institutions first trying government
sites such as the National Institutes of
Health or the Centers for Disease
Control you can look to leading
universities and academic medical
centers as well for information on
studies and up-to-date medical
information and then prestigious
institutions like the American Diabetes
Association American Heart Association
also put out information for the patient
consumer and when this information
changes or guidelines need to be updated
you can go to any of these places and
find out what those are this ensures
that you’re getting the best and most
up-to-date information my colleagues and
I have been working on how do we solve
this problem with the healthcare
information disparity what do we do
about it and we have formed a company
called Connect well it is a
public-private partnership with the
University of California Berkeley School
of Public Health and using the school of
publics house vast medical knowledge and
library and connect Wells Technology on
search and wellness platform we have
combined a way to bring the company and
its information to the patient consumer
the the product actually offers a health
and wellness digital library where you
can look up a number of different
disease and and medical information the
information is well written short
concise health literate so that you can
understand with very engaging photos in
addition not to be forgotten our
wellness initiatives we often assume
that we know how to take care of
ourselves that everybody’s learned this
growing up but we need to be remember
how to eat well get proper nutrition get
proper exercise get good quality sleep
manage our stress and you know take care
of our our women when they’re pregnant
make sure that they’re getting the best
brain natal care and then finally is our
healthy recipe collection these actually
come from the famous berkeley wellness
kitchen cookbook which really emphasizes
good eating Whole Foods and then healthy
preparation of meals together this
entire offering offers a guided learning
experience for the patient consumer and
can be a trusted place where to get your
information from a reputable source the
democratization of health care
information is a powerful resource it
can actually help you engage with your
patient I mean with your physician offer
you information so you can make better
decisions for yourself it can empower
you to become more active participant I
want to finish telling you about the
patient that I started to tell you about
at the beginning so as I mentioned she
stopped taking around to a bunch of
antiretroviral therapy thereby putting
her young baby at risk just this week
she actually delivered her baby it’s
healthy
so far it’s HIV negative it’s gonna need
actually six months of testing to make
sure that it remains negative but I’m
very hopeful because we restarted the
medication that the baby will become and
stay negative the point of all this is
that where you get your health
information matters and how you
interpret it and or misinterpret it
matters so we need to choose wisely
choose trusted sources and make the right decision so thank you very much
I’d like to introduce you to honor my
patient this is the
24 years old he’s from Nigeria she’s 32
weeks pregnant and she has HIV infection
I’ve been treating her with anti
retrovirals and she’s been doing really
well her HIV viral load is now
undetectable thereby reducing her rate
of transmission from almost 50 percent
down to less than 1% she’s had no major
side effects on therapy and I’ve been
really pleased with the progress her
baby’s been growing well and she seemed
very happy as well she recently came
back for a follow-up visit and she told
me she had stopped taking all of her HIV
medications I was pretty shocked I said
well why did you do that and she said
that she had read an article on the
internet saying that medications and
pregnant women can cause problems from
the baby and so she thought that wasn’t
healthy being on these medications so
she decided to stop and I told her well
that’s for non hiv-positive non
hiv-positive pregnant women not in your
particular case so unfortunate she made
a decision that may cost the HIV status
of her young child and it’s sad but
that’s what she did and she
misunderstood the information that she
found on the Internet so how many of you
have actually searched the Internet
you’ve had some symptoms you’ve gone
online only to diagnose yourself with
some horrible disease you know and get
get nervous about it’s very common and
in fact online medical searches are the
second most common search that we do
online just underneath online shopping
actually 80% of you go online to look up
health care information and it’s a very
common thing many of these things that
that we look up are useful but they can
also be a two-edged sword you can look
up and find something that doesn’t
pertain to you just like my patient
misinformation and then you may make a
decision that is not in your best
interest but one of the reasons why we
spend so much time looking up
information is because Americans have a
lot of chronic medical problems 60% of
Americans actually have one chronic
medical condition and 42 percent of
Americans actually have two or more
chronic medical conditions a chronic
medical condition
is actually having to go to a doctor be
monitored for a year and receive therapy
so that’s what’s the definition of a
chronic medical condition so if you can
imagine two or more that’s quite serious
many of these are actually lifestyle
conditions things like obesity diabetes
high blood pressure high cholesterol
heart and lung disease things that we
can actually do something about and
that’s why people are spending so much
time looking on the internet about these
medicine has a very significant
principal agent issue the agent is the
physician somebody who’s highly educated
highly trained a lot of skills the
patient is usually someone who’s sick
hurting in need and there’s a quite a
bit of imbalance between the two people
not long ago
healthcare information for a patient was
not available to the patient remained
with the doctor and the patient actually
also had no way of looking up healthcare
information on their own the internet
and technology has brought about a
democratization of healthcare
information people can access
information now anytime anyplace on any
device but you should also know that
somebody can put out information anytime
anywhere on any device whether that
information is true or not whether it’s
misinformation or outright lies and you
need to be able to determine how do I
determine the difference take a look at
this busy slide multiple sources of
healthcare information you can look to
any of these places and find information
about health care we are bombarded by
this on a daily basis it’s information
overload all of these sites can actually
influence whether you decide to seek
medical treatment or not go to the
doctor or stay home vaccinate your child
or take the risk of having that child
get a serious medical illness actually
even starting a fad diet the keto diet
right I mean all of these sites will
tell you whether something’s right or
wrong for you many of these sites are
actually supported by advertising
even lobbying groups so that can create
a lot of bias conflicts of interest so
how do you know whether what you’re
accessing is actually true or not how do
you make that decision where you get
your healthcare information really
matters it does I say that you should
look to well-known and prestigious
institutions first trying government
sites such as the National Institutes of
Health or the Centers for Disease
Control you can look to leading
universities and academic medical
centers as well for information on
studies and up-to-date medical
information and then prestigious
institutions like the American Diabetes
Association American Heart Association
also put out information for the patient
consumer and when this information
changes or guidelines need to be updated
you can go to any of these places and
find out what those are this ensures
that you’re getting the best and most
up-to-date information my colleagues and
I have been working on how do we solve
this problem with the healthcare
information disparity what do we do
about it and we have formed a company
called Connect well it is a
public-private partnership with the
University of California Berkeley School
of Public Health and using the school of
publics house vast medical knowledge and
library and connect Wells Technology on
search and wellness platform we have
combined a way to bring the company and
its information to the patient consumer
the the product actually offers a health
and wellness digital library where you
can look up a number of different
disease and and medical information the
information is well written short
concise health literate so that you can
understand with very engaging photos in
addition not to be forgotten our
wellness initiatives we often assume
that we know how to take care of
ourselves that everybody’s learned this
growing up but we need to be remember
how to eat well get proper nutrition get
proper exercise get good quality sleep
manage our stress and you know take care
of our our women when they’re pregnant
make sure that they’re getting the best
brain natal care and then finally is our
healthy recipe collection these actually
come from the famous berkeley wellness
kitchen cookbook which really emphasizes
good eating Whole Foods and then healthy
preparation of meals together this
entire offering offers a guided learning
experience for the patient consumer and
can be a trusted place where to get your
information from a reputable source the
democratization of health care
information is a powerful resource it
can actually help you engage with your
patient I mean with your physician offer
you information so you can make better
decisions for yourself it can empower
you to become more active participant I
want to finish telling you about the
patient that I started to tell you about
at the beginning so as I mentioned she
stopped taking around to a bunch of
antiretroviral therapy thereby putting
her young baby at risk just this week
she actually delivered her baby it’s
healthy
so far it’s HIV negative it’s gonna need
actually six months of testing to make
sure that it remains negative but I’m
very hopeful because we restarted the
medication that the baby will become and
stay negative the point of all this is
that where you get your health
information matters and how you
interpret it and or misinterpret it
matters so we need to choose wisely
choose trusted sources and make the right decision so thank you very much
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