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A Child Prodigy, a Painful Disease, and a Life-Changing Treatment | National Geographic


every man who has a dream of have a
child dream of a child black season
look at him and you just say I cannot
believe he’s sick since early on you see
he loves music is the most important you
see kids traveling play what he was
playing before
I always say that the violin helps save
his life for one week he was fully
paralyzed he would not even speak and he
would just look at everybody like moving
his eyes we realized that he loves music
and with poor music for him but when he
heard the violin you could see a tear on
his eye his face was just that big
question was why
I cannot allow yeah when he starts to
speak again
you dance why I cannot move why I am see
friend he kicked me Oh kick me this was
the most difficult question to answer
because what you can say you see a child
five years old crying to you not a pain
but said that is very tough everything
was dark
everything was dark
I loved just boy so much if my point go
I have no autism
Oh Felisa miles after poor zone
yeah the first our cutest Oh about six
months later he had another one we’re so
well or have to do something when the
doctor called and said you have one
angle that is fully match Caesar and
doesn’t have sickle cell I felt like
it’s Christmas and you just get the best
gift because even though he was doing
fine we know anytime something can
happen to him and when we were 12 weeks
pregnant he had the third stroke and
asked the AutoZone Marie need to look at
him and said Caesar you have to be
strong because you don’t have a baby I
took him to the hospital the night of
31st of May okay let’s go I brought him
home on 24th of July and he was not
walking
have you since been about five months
without walking by himself
Camile about the best gifts give no skid
yes now that left yes really wouldn’t
this yes
right of the house the first day I took
him to the violin lesson he was crying
he was not able to play Caesar has a
gift I was playing the Vivaldi a minor
when I was 12 and Caesar was playing
that when he was 5 I certainly never
taught anyone who was able to take on
such challenges at such a young age he
just really had a lot of joy in the
process of making music and a walk for
me so Manny but our first lesson after
his stroke he couldn’t walk yet or stand
up so he was sitting and playing and his
dad would carry him he tried to play it
for me and he couldn’t play one note he
could put his fingers down just a little
bit and he couldn’t really remember how
to bow
you can hear it I can tell you can hear
it but we have to remind the fingers of
what to do because you’re playing almost
the right notes
but different fingers I was a little bit
worried that maybe too much damage had
been done he wouldn’t be able to regain
the skills
yes it’s calm down okay okay Smith no
he’s not bad
else is not good just okay you know I
don’t like okay he’s very good oh all
right I’ll see you next time and now at
four months later he’s starting to be
able to have that joy again thank you
you’re welcome
the carer for pre-transplant the
transplant self and the post transplant
the whole thing is very expensive the
case Zack largest one was done in
Florida and was costing half a million
dollars you don’t know what insurer is
going to pay but the life is in the line
so that’s as they scare part I am really
happy because baby hallelu is gonna big
rise the best friend what’s her name
Helen
when this child is born you take the old
vertical port as a material for the
transplant the only way to avoid another
incident that could kill him now the
transplant has 95 percent chance of cure
sickle-cell anemia
oh my goodness that is a really good
collection you are my head sometimes
they say oh did you genetically modify
your baby no we did not decide to have
this baby just for the transplant
because it was fun to take on the car
and just baby will come to our family
and we’ll be loving with part of us sure
it is factor pearls even when we start
the whole procedure I don’t have words
to explain like what is when you see
your child in pain and if you like I
could prevent it season one day Caesar
was really sad because he told I can’t
walk and I said you know what when the
baby be born the baby will give you a
gift and you won’t be sick anymore
never she looking him his life back
every house has a light the light enough
supposed to be golem if the light was
gone the life in the house was gone
she’s light is power no matter how
desperate you are no matter how how this
situation looks like we will make I told
him see the Beast oh we’re awake
you
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