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How a 30 Year Old Hospice Patient Changed My Life | Ellen Douglas | TEDxGoldeyBeacomCollege


how many people know what it means to
self-actualize raise your hand okay to
reach your potential okay what about
Maslow’s hierarchy of need have you ever
heard of that right so everybody is
taught that Maslow’s hierarchy of need
everybody’s taught that to reach your
potential that should be the drive right
isn’t it interesting that when you try
to do that sometimes people think that
you’re arrogant your know-it-all I don’t
want to come across that way but
sometimes people look at me that way I
want to be the best that I can be not
perfect I am NOT a control freak at all
and I am NOT a perfectionist if you
don’t believe me you can go look in my
car okay I just want to be the best I
can be and I want my friends I want
everyone that I interact with to be
their best so I’m going to try to raise
them up and Scott Peck was asked in the
road less traveled what he thought the
meaning of marriage was what was the
highlight of being married he said to
help your partner reach their spiritual
potential how many marriages is that
their foundation oh you’ve gained weight
I don’t like how you look you know you
know you’re changed you’ve changed you
need to grow together you need to
challenge each other or it gets boring
one of my favorite musicians is Dan
Fogelberg and he wrote a song on his
Netherlands album and there is a
in there that he talks about the Meuse
in terms of authors and poets and
artists improving our life and he says
oil-on-canvas
couplets and stanzas to divine who you
are not define to divine who you are
we need to divine each other we don’t
labels divide us we need to lift each
sometimes our relationships help us do
that but sometimes life has a way of
waking us up and that to me is what
lightning strikes means I was in my
attic studio a number of years ago in
Pennsylvania and Pittsburgh overlooking
the South Hills and there was a bad
storm boom lightning hit my attic 15
feet away from where I was standing
from maybe you and the orange nope boom
it woke me up so there are these ways
that that life wakes us up last October
I was driving from Youngstown Ohio to
Pittsburgh I had done it dozens of times
it was in October as beautiful night
head the car on cruise control and I’m
singing to these oldies you know going
74 miles an hour to zero in about two
seconds it was what they hit a wall a
deer had jumped in front of me I saw him
for a split second and then it was over
I never even saw him move I never even
saw me hit him a big buck with horns but
I got out of that car and the engine was
steaming there was and I’m gonna tell
you this was not a a fender bender this
was divine providence okay I got out of
the car and I called 911 family but I’m
walking back and forth and I’m looking
at that car and I’m thinking oh my gosh
you know now she had mentioned that I
have osteogenesis imperfecta
it’s a brittle bone disease I started
braking when I was 3 years old I’ve had
over 20 broken bones three broken legs
no I don’t have three legs
this one was twice and cleaning my femur
I’ve crushed my foot I have six screws
in there I’ve crushed this elbow that
they thought they might have to remove
it my wrist three times skull pelvis
tail bones fingers toes so I was a
little nervous about the airbag I
thought that I should get it
disconnected so you can understand why I
was standing there thinking I don’t have
a scratch on me
all right let’s leave the accident let’s
jump ahead a little bit funny the Amanda
mentioned 911 911 I had a great job at
the University of Pittsburgh Medical
Center working for an osteoporosis
research doctor I was in a 14-year
relationship it was good but it wasn’t
great the Moody Blues says it’s all very
nice but not very good you know again
sometimes you’re falling to me do
lukewarm and I was uncomfortable I
didn’t know why but there was something
missing a friend had given me a book
called callings great book if you’re
trying to figure out your life callings
finding and following an authentic life
by Greg lavoy that book changed my life
I went to one of his workshops
long story short at the end we circled
all the notes we had taken and what were
the words that most you know focused on
what we had learned two words for me
love and fear I’m like okay how do we
punch that into monster.com you know
where am I gonna get a job with this you
know I had quit my job and I thought I
wonder how many people are dealing with
this people kept saying you need to be
on Prozac and I wasn’t I wasn’t opposed
to taking medicine but I thought you
know is that you know you just gonna
take a pill the sugar ill you know I
wanted to know what other people were
doing and not just my friends because
the people that you hang out with
usually think kind of like you right so
I traveled in my 20 year old Fiat
convertible it’s like a Fred Flintstone
‘mobile okay and I traveled four
thousand four hundred miles for 30 days
by myself through 12 states to interview
strangers about contentment about their
work the relationship sexuality
spirituality and I’m not going to tell
you anything more about it so maybe
that’ll be another top coming up
somewhere huh but when I got done with
it I came back to Pittsburgh and my
father he was on hospice and they had
interviewed him an audio tape and he
called me up and he called me Charlie
he says hey Charlie guess what he Chris
they interview me
they’re recording my life nicely they
burned get their boots
you know he’s a storyteller but he was
excited and I thought wow that’s pretty
cool I was interested in audio-visual
things so I went to this hospice and I
asked them if they were interested in
starting a program where I interviewed
their patients they were like yeah
that’s great but you know nonprofits we
don’t really have the money to do that
so after you know I just planted that
seed and in the meantime I had to make a
living but I wanted to do things that I
believed in so I I got into fundraising
and I raised money for the Sierra Club
Southern Poverty Law Center PBS wy EP
and Pittsburgh great radio station and
then I got a job is the public relations
manager at IKEA and I love that job that
was a that was a great job but all of a
sudden I get a phone call now 14 months
had gone by okay since I approached that
hospice 14 months I got a phone call
from them and they say we have some
money now are you still in I said yeah
the day they called me 14 months later
the day they called me I had just walked
in my house from my father’s funeral
I hadn’t even unpacked my car 14 months
and they called me on that day so during
my interview we’re all crying and
they’re like are you sure this isn’t you
know too raw I said oh no my father has
a hand in this so I became the Quality
Program Coordinator and I interviewed my
patients and they wanted me to do a
story for the newspaper and I said you
know let me get the the right story you
know I’ll know it that’s what I meant
Laura Laura Magna Mayer her story is in
the Pittsburgh post-gazette 2005 do you
want to look it up Laura McNamara MA and
ka my er Laura was 30 years old she had
met her husband in the Marine Corps she
was a marathon runner she did
illustrations for children’s books she
was a realtor dynamo this is what she
was she had lived a lifetime in that 30
years more than some people with to a
hundred and I will say that we need to
learn to celebrate people’s wives at the
end of life it is are you surprised
when somebody’s gonna die you didn’t
know we do need to learn to celebrate it
said of course but her family was there
and her husband’s family and they were
singing songs and from the halls of
money and they were singing hymns and
they were joking and they were crying
and they were showing pictures around
and you know the photographer was there
which by the way they did three full
pages on her
full pages and her son was sitting on
the bed six years old and she kind of
made up you know and he said mommy are
you okay mommy are you okay okay
thumbs up my life now the meaning of
life you know it is to live my life so
that I have a peaceful death this is
your barometer I hope that I could have
a thumbs up and I wanted the back really
quickly to the accident the tow truck
arrived and it was pretty cold he was a
nice guy
real nice guy and he said come on in the
truck while we’re waiting for the police
and we got talking about music because
that’s my favorite subject you know I’m
a DJ once in a while and and I had my
own show it why a shoe for a couple
years and I love music so of course I
get talking about the Beatles because
you know those are my guys and he liked
them too
he were talking about the Beatles and
you know and I said yeah George is my
favorite okay he says yeah but you know
what he had to go and get spiritual you
yeah
why did he have to go and do that George
you know look it’s a bad thing we want
to watch all these negative news shows
there used to be a show on Saturdays
about 20 years ago that was like a et
but it was like a good positive news you
know it didn’t last a year at the same
time there was a magazine called hope
are we gonna settle for this
we’re not self actualizing and let me
deal with severe depression and thoughts
of suicide through my whole life you
know why because I’m extremely sensitive
I’m a highly sensitive person go to TED
Talks and type in HSP you’ll learn a lot
as I did not only am i highly sensitive
I found out this year that I am an
intuitive empath I’m an intuitive
empathic person my sense of people’s
emotions are like a dogs smell and I’m
going to tell you something a lot of
people that are struggling with
you don’t want to be here because
negativity and lying those kind of
things to us is what kryptonite I can’t
breathe when I see people in trouble
oh don’t worry Ellen we got this you
know my you know you take care of
you tell somebody that loves you not to
pair so I’m asking all of you if you
have anybody dealing with mental health
addiction they talk about suicide don’t
think they’re using it don’t y’all
either just use it to manipulate me you
may be surprised someday okay get your
thumb up there get your thumb up raise
your thumbs up okay this is your
barometer and it’s gonna go with you
wherever you are it’s connected okay and
if you don’t share it with anybody else
inside your head with every decision
that you make every relationship
everything that you say everything that
you do you want to strive to keep a thumbs up thank you
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