when you see a hummingbird what do you
think do you think of a cute little bird
well to me the main bird has a much
deeper meaning the hummingbird is the
symbol of a rare brain disease called
progressive supranuclear palsy also
known as PSP this disease has taken a
toll on my life and I am here to educate
you all about this little-known disease
PSP is ug Jenner degenerative brain
disease that means the tissue in certain
areas of the brain are going away and
will never come back there is no cure
and people still don’t know what causes
it a PSP patient will live seven to
eight years from when symptoms start
there are about 25,000 people in America
that have PSP and approximately six in
every 100,000 people worldwide this is
about 450,000 people at any given time
this number may sound like a lot but
just think about how many people have
multiple sclerosis just to compare
there are approximately 2.5 million
people in the world that have MS at the
beginning of PSP symptoms are very
subtle and it’s hard to tell anything is
wrong PSP is commonly diagnosed as
Parkinson’s disease due to similar
symptoms at the beginning doctors can
figure out that it is not parking since
because when they give patients
treatment for Parkinson’s it does not
so they must go deeper into research to
figure out that it is PSP some of the
similar symptoms of PSP and Parkinson’s
are speech changes writing changes and
rigid muscles I have mentioned that PSP
has taken a toll on my life and here’s
why
my great grandma who had called grams
unfortunately passed in April of 2017
due to this disease I can’t explain how
sad it was to watch her suffer what PSP
ever since I could remember my grams has
been changing and now that I think about
it it all makes sense the symptoms that
she was having were from PSP but we
didn’t know it yet there was something a
bit different with my grams and her
experience with PSP after I grams passed
away my mom’s mother donated grams his
brain to the Mayo Clinic a non-profit
organization that does research and
education to every human who needs
healing a lot of times when you send in
a brain to get looked at there is PSP
and other diseases but with grams she
only had PSP every PSP patient will have
slightly different symptoms but out of
this list here are what they may have
falling backwards at the beginning
shuffling feet unable to look down or up
choking stiff muscles depression and
anxiety speech changes sleeping problems
forgetting things inability to
communicate at the end lose use of legs
sensitivity to light and may even lose
interest in fun activities PSP symptoms
get worse as time goes on medicine that
may have helped symptom at the beginning
may do nothing at the end to help that
exact same symptom a very hard thing
that happens is their communication a
PSP patient will have a very hard time
communicating
the doctor once said that any PSP
patient will feel trapped inside their
body wanting to talk and write but they
just can’t get it out it’s very sad
by now you may be wondering why is the
hummingbird the symbol of PSP the
hummingbird is the symbol a PSP because
of the areas of brain cells that die if
you scan any PSP brain there’s an empty
space and it’s in the shape of a
hummingbird so now every time I see a
hummingbird
I think of grams and how much I miss her
so what will you do will you donate to a
research center will you do some of your
own research and educate your friends
maybe you can just be more grateful for
your health and if you are diagnosed
with Parkinson’s be aware that it might
not be it it could be PSP so you should
ask for more information if some day you
do get diagnosed with Parkinson’s I want
everyone to help and with this big
things will happen and someday maybe you
can find a cure and that would help hundreds of thousands of people
think do you think of a cute little bird
well to me the main bird has a much
deeper meaning the hummingbird is the
symbol of a rare brain disease called
progressive supranuclear palsy also
known as PSP this disease has taken a
toll on my life and I am here to educate
you all about this little-known disease
PSP is ug Jenner degenerative brain
disease that means the tissue in certain
areas of the brain are going away and
will never come back there is no cure
and people still don’t know what causes
it a PSP patient will live seven to
eight years from when symptoms start
there are about 25,000 people in America
that have PSP and approximately six in
every 100,000 people worldwide this is
about 450,000 people at any given time
this number may sound like a lot but
just think about how many people have
multiple sclerosis just to compare
there are approximately 2.5 million
people in the world that have MS at the
beginning of PSP symptoms are very
subtle and it’s hard to tell anything is
wrong PSP is commonly diagnosed as
Parkinson’s disease due to similar
symptoms at the beginning doctors can
figure out that it is not parking since
because when they give patients
treatment for Parkinson’s it does not
so they must go deeper into research to
figure out that it is PSP some of the
similar symptoms of PSP and Parkinson’s
are speech changes writing changes and
rigid muscles I have mentioned that PSP
has taken a toll on my life and here’s
why
my great grandma who had called grams
unfortunately passed in April of 2017
due to this disease I can’t explain how
sad it was to watch her suffer what PSP
ever since I could remember my grams has
been changing and now that I think about
it it all makes sense the symptoms that
she was having were from PSP but we
didn’t know it yet there was something a
bit different with my grams and her
experience with PSP after I grams passed
away my mom’s mother donated grams his
brain to the Mayo Clinic a non-profit
organization that does research and
education to every human who needs
healing a lot of times when you send in
a brain to get looked at there is PSP
and other diseases but with grams she
only had PSP every PSP patient will have
slightly different symptoms but out of
this list here are what they may have
falling backwards at the beginning
shuffling feet unable to look down or up
choking stiff muscles depression and
anxiety speech changes sleeping problems
forgetting things inability to
communicate at the end lose use of legs
sensitivity to light and may even lose
interest in fun activities PSP symptoms
get worse as time goes on medicine that
may have helped symptom at the beginning
may do nothing at the end to help that
exact same symptom a very hard thing
that happens is their communication a
PSP patient will have a very hard time
communicating
the doctor once said that any PSP
patient will feel trapped inside their
body wanting to talk and write but they
just can’t get it out it’s very sad
by now you may be wondering why is the
hummingbird the symbol of PSP the
hummingbird is the symbol a PSP because
of the areas of brain cells that die if
you scan any PSP brain there’s an empty
space and it’s in the shape of a
hummingbird so now every time I see a
hummingbird
I think of grams and how much I miss her
so what will you do will you donate to a
research center will you do some of your
own research and educate your friends
maybe you can just be more grateful for
your health and if you are diagnosed
with Parkinson’s be aware that it might
not be it it could be PSP so you should
ask for more information if some day you
do get diagnosed with Parkinson’s I want
everyone to help and with this big
things will happen and someday maybe you
can find a cure and that would help hundreds of thousands of people
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